I've been researching LDN for 6 months now...I'm still on the fence. My biggest worry is you can't take any opiate (pain med) with it, if you do it will make you very ill. I don't take opiates very often but when the pain gets really bad I have to. I've also been hospitalized a few times for different things (kidney stones was one) they had to give me pain meds. If I was on LDN they couldn't. I also had a heart cath, they used fentanyl (I think?) a pain medication. If I was on LDN I'm not sure what they would/could have used.

I think I have literally tried every medicine out there either for the fibro or to battle the side effects of the meds for the fibro. I currently am not on any meds other than vitamins. I've been working on building my overall health in an effort to fight the symptoms of fibro. So far, I am having way more better days than bad ones. I use Thorne nutrients magnesium, vitamin D, selenium, B12 and occasionally vitamin C and Zinc. I'm still learning that our american diet is not giving us what we need especially those who suffer from disease.

On it and love it!
Gave me a bit of my life back. First 2 months suck with nausea. I call it the adjustment phase. Totally worth it and would do it again. Of course I take other meds but I credit this one with my improvement!

Thank you so much for your reply to be honest I don't have a good feeling about it as I have read about it still being tested, I just wondered if anyone out there is taking it 😊

No, never hear of it, thanks for the link, next time I go to rheumatologist I will ask about trying that. Thank you. And Good Luck to you.