A MyFibroTeam Member
I've tried several myself, as for vitamins and supplements, they are about as useless as a bicycle without pedals. I found a med in 2013, lorazepam. Its worked wonders, I actually have a life. I've had fibro since 1989. For the first time in in decades I have very few flares and pain. I'm an old pro when it comes to fibro, the do's and don'ts. I learned the more you try to gag it with meds and vitamins and supplements you basically piss it off LOL I decided to sneak up behind it and gently hush it with a little pill that targets the nervous system. Its not a pill that leaves you tired, sluggish and dragging the lake for the moon, I can't even tell I take it, I can cope and function and actually have a normal day. I wish I'd found this Happy Pill in 1989 when I was diagnosed !!!!!!! I have it now. I basically do as I please !!!!!!!!!! Blessings !!!!!!!!!!!
I think I have literally tried every medicine out there either for the fibro or to battle the side effects of the meds for the fibro. I currently am not on any meds other than vitamins. I've been working on building my overall health in an effort to fight the symptoms of fibro. So far, I am having way more better days than bad ones. I use Thorne nutrients magnesium, vitamin D, selenium, B12 and occasionally vitamin C and Zinc. I'm still learning that our american diet is not giving us what we need especially those who suffer from disease.
On it and love it!
Gave me a bit of my life back. First 2 months suck with nausea. I call it the adjustment phase. Totally worth it and would do it again. Of course I take other meds but I credit this one with my improvement!
I've been researching LDN for 6 months now...I'm still on the fence. My biggest worry is you can't take any opiate (pain med) with it, if you do it will make you very ill. I don't take opiates very often but when the pain gets really bad I have to. I've also been hospitalized a few times for different things (kidney stones was one) they had to give me pain meds. If I was on LDN they couldn't. I also had a heart cath, they used fentanyl (I think?) a pain medication. If I was on LDN I'm not sure what they would/could have used.
Thank you so much for your reply to be honest I don't have a good feeling about it as I have read about it still being tested, I just wondered if anyone out there is taking it 😊
Never heard of it so I googled it:
Low-dose naltrexone (LDN) has been demonstrated to reduce symptom severity in conditions such as fibromyalgia, Crohn’s disease, multiple sclerosis, and complex regional pain syndrome. We review the evidence that LDN may operate as a novel anti-inflammatory agent in the central nervous system, via action on microglial cells. These effects may be unique to low dosages of naltrexone and appear to be entirely independent from naltrexone’s better-known activity on opioid receptors. As a daily oral therapy, LDN is inexpensive and well-tolerated. Despite initial promise of efficacy, the use of LDN for chronic disorders is still highly experimental. Published trials have low sample sizes, and few replications have been performed. We cover the typical usage of LDN in clinical trials, caveats to using the medication, and recommendations for future research and clinical work. LDN may represent one of the first glial cell modulators to be used for the management of chronic pain disorders.
Keywords: Anti-inflammatory, Chronic pain, Fibromyalgia, Glial cell modulators, Low-dose naltrexone, Microglia
Other results were it was still in the testing stage...........I wouldn't take it personally, I've had excellent results since 2013 with Lorazepam, its been my miracle drug................I've actually had a life....................
No, never hear of it, thanks for the link, next time I go to rheumatologist I will ask about trying that. Thank you. And Good Luck to you.