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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How many people with Fibro have a positive ANA for LUPUS?

A MyFibroTeam Member asked a question 💭
Denver, CO
August 10, 2017
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Answer Summary

Members shared their experiences with positive ANA tests in the context of fibromyalgia, with many describing confusing diagnostic journeys... Read more

Members shared their experiences with positive ANA tests in the context of fibromyalgia, with many describing confusing diagnostic journeys that included overlapping conditions like lupus, Sjögren's, and Mixed Connective Tissue Disease (MCTD). Several members explained that their ANA levels varied over time, sometimes testing positive for lupus and later negative, while others were told they had MCTD, which can present symptoms of multiple autoimmune conditions without fully meeting criteria for any single one. A recurring theme was the challenge of navigating uncertain diagnoses, the importance of regular monitoring through bloodwork, and the shared experience of living with overlapping symptoms that can shift or resist clear categorization.

A MyFibroTeam Member

I have had several positive ANA tests and then have it go back to being negative. It is very confusing to me and my rheumatologist is monitoring me for Lupus. MaggieCorrigan, what is MCTD?

August 11, 2017
A MyFibroTeam Member

@eunnoc - I had a positive ANA for Fibro and Lupus. I had another ANA done last year after almost 9years and it came back Positive for Fibro and Lupius. This is why many doctors do not want to treat Fibro---it is an autoimmune disease that could be one of five or six different illnesses.

August 14, 2017
A MyFibroTeam Member

@A MyFibroTeam Member, I don't have trouble swallowing, I do have TMJ that effects my jaw. I also have cronic dry eyes and my mouth is so dry I lose my voice.

August 13, 2017
A MyFibroTeam Member

I have Fibromyalgia and have a positive ANA-speckled (keeps getting higher) last done it was 640, I was told Lupus, so then went to get a second opinion and was told it was MCTD, so decided to go for a third opinion and also was told MCTD unspecified as I have symptoms of all of them. Oh joy lucky me. Not sure if Fibro is connected to a positive ANA, so far no doctor has said it was connected.

August 11, 2017
A MyFibroTeam Member

#MaggieCorrigan Thank you. Yes I have all of these too.

August 16, 2017

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