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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can I have lupus?

A MyFibroTeam Member asked a question 💭
Helsingborg, sweden

Please don't laugh because I am a typical Scandinavian blue-eyed pale blond woman with a strange question
Mothers relatives are Swedish back to at least 18th century. Dads are Danish.

However very dark and no one knows who my great great grandfather was. I know that Nordic people rarely get lupus. Nevertheless, most symptoms apply on me! Even the butterfly-redness. I thought it was rosacea and the creams for Rozacea helps. How can you tell the difference between fibro and lupus . I have… read more

June 30, 2016
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Answer Summary

Members rallied around someone questioning whether their symptoms might be lupus despite their Scandinavian background, with the resounding... Read more

Members rallied around someone questioning whether their symptoms might be lupus despite their Scandinavian background, with the resounding message being that autoimmune diseases have no preference for race, age, or gender. Several members shared their own frustrating diagnostic journeys, describing conflicting opinions from different doctors, borderline or fluctuating test results, overlapping symptoms between lupus and fibromyalgia, and the challenge of conditions that can only be diagnosed through a combination of bloodwork and clinical symptoms rather than one definitive test. A recurring theme was the importance of advocating for yourself with a doctor who listens, pursuing thorough testing including ANA panels and thyroid checks, and seeking specialist referrals when needed, all while acknowledging the emotional toll of living in diagnostic uncertainty.

A MyFibroTeam Member

Also autoimmune diseases have no preference. Women, men and young people.. black, green , purple, again it has no preference.

June 30, 2016
A MyFibroTeam Member

I pray they find what is wrong so they can get you on track ..

July 3, 2016
A MyFibroTeam Member

Lupus cannot be definitively diagnosed...it is diagnosed by the symptoms and the positive ANA, which you have. I have a positive ANA and have gotten every opinion there is, but no answers. Lupus is very similar to fibro. You can have a positive ANA and not have Lupus....but they say there are many "Uknown Auto-Immune Diseases"....which is my last diagnosis regarding my symptoms and ANA test. Frustrating!

July 1, 2016
A MyFibroTeam Member

Now I understand why they say a doctor is "practicing" medicine........every doctor seems to have a different opinion as to what is wrong with us. My PCP is great and listens to me and tries to help me but I went to an otho due to my hands...dxed with severe carpal tunnel and needed immediate surgery to correct this. He did additional blood work before the surgery and my ANA came back indicating that I had Lupus. He referred me to a Rheumie and she did more bloodwork and said that I am borderline Lupus. My PCP retested me and the ANA came back negative. So do I have Lupus aloong with Fibro...who knows. I do have the butterfly rash. Thinking about going to a dermatologist to check out the facial redness to get yet another opinion. By the way, had the wrist surgery and almost a year later...still have the same pains....Hugs

July 1, 2016
A MyFibroTeam Member

I had blood test for Lupus but they came back negative. I'm currently waiting to see a dermatologist as I have a rash that appears with no explanation, someone said it could be i have skin only lupus but that wouldn't show on blood tests. Speak to you doctor x

June 30, 2016

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