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A MyFibroTeam Member asked a question 💭
Derby, UK

How do you keep cool in the hot weather when your hypersensitive to temperature change?

July 18, 2017
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Answer Summary

Members shared creative strategies for managing temperature sensitivity and hot flashes in warm weather, with the most popular solutions being... Read more

Members shared creative strategies for managing temperature sensitivity and hot flashes in warm weather, with the most popular solutions being ceiling or box fans running constantly, staying hydrated throughout the day, taking cool showers, and using cooling towels or cold compresses on the neck. Several members mentioned practical tools that have brought relief, including aloe vera wipes, cooling gel pillow pads, loose clothing, blackout blinds to block sun, Mission cooling towels that drop 30 degrees below body temperature, and increasing vitamin D3 supplementation which one member found reduced sweating. A recurring theme was the frustrating back-and-forth nature of feeling too cold then too hot within minutes, the need to avoid cooking or going outside during peak heat, and the importance of replacing electrolytes when sweating heavily to prevent additional complications.

A MyFibroTeam Member

Hi..I always carry a packet of aloe vera wipes with me. I find them cooling if I can't cool down and I also have a fan by my bed which is timer controlled so it's brilliant when I go to bed.

July 19, 2017 (edited)
A MyFibroTeam Member

I have a ceiling fan which is on all night long. I also use magicool and take cooler showers. Cool drinks, freezer full of ice, ice pops. And if all else fails I'm moving into the freezer x

July 18, 2017
A MyFibroTeam Member

Stick my feet in the kiddy pool and my girls rub my legs!

July 18, 2017
A MyFibroTeam Member

@A MyFibroTeam Member keeping cool is one of the hardest for me also. I close the blinds as soon as the sun starts to shine through them. I stay hydrated and if I get too hot I take a cool shower and I do not leave the house unless I absolutely have too.

July 18, 2017
A MyFibroTeam Member

The cold affects me more than heat.. but I will feel chilly, put a jumper on but next minute I have to take it off as I get too hot.
I stay hydrated like others have mentioned. If I'm uncomfortably hot I wear as little as possible, as little as I can get away with anyway!!!!!! Lol, I have invested in some really light clothing that doesn't cling.

July 20, 2017

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