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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Lake Elsinore, CA

I'm newly diagnosed and am experiencing tingling/ numbness in my hands, arms, feet and legs. Most commonly it's in my left hand and arm though. It feels weak almost? I can still lift things and carry things, but the muscles feel like they are extremely fatigued. I don't know how else to describe it. My doctor didn't seem satisfied with my explanation and just said to go to the ER if it becomes weakness that makes it difficult to hold or carry objects.

Has anyone else experienced this? Is this… read more

July 12, 2017
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Answer Summary

Members strongly validated the experience of numbness and tingling in hands, arms, feet, and legs, with many describing similar asymmetrical... Read more

Members strongly validated the experience of numbness and tingling in hands, arms, feet, and legs, with many describing similar asymmetrical symptoms, particularly weakness and fatigue in one side more than the other, and shared the frustration of undergoing numerous tests that come back normal only to learn these sensations are part of fibromyalgia. Several members offered reassurance that these symptoms are common with fibromyalgia, though some emphasized the importance of ruling out other conditions like carpal tunnel, MS, or nerve issues, especially when new or worsening symptoms appear. A recurring theme was the emotional toll of not knowing what is dangerous versus just fibro, the fear and isolation that comes with unexplained neurological symptoms, and the community's collective empathy for navigating a condition where pain and weakness are real but often invisible to tests and doctors.

A MyFibroTeam Member

I can't tell you if it's normal to Fibromyalgia but I do experience these symptoms. Last week I freaked out because my arms stopped working and my gripped weakened. I was unable to pick anything up, or put any power into my movements. I'm not sure what the cause is yet. After, my arms were painful, pins and needles and weak. Now it's worn off. I'll let you know what I find out. I'm determined to get to the bottom of that because I have a manual therapy career I'm determined not to have to give up.

July 12, 2017
A MyFibroTeam Member

People with fibromyalgia may have feelings of numbness and tingling in their hands, arms, feet, legs or sometimes in their face. These feelings can suggest other disorders, such as carpal tunnel syndrome, neuritis or even multiple sclerosis. Therefore, people with fibromyalgia often undergo numerous tests for such conditions, only to find that the test results are normal. It is very frustrating to go through all of these tests and it does not show that anything is wrong so now when you are in front of your Dr. you are now feeling ashamed as if you just wasted their time or that they are thinking that it is all in your head. It's not all in your head it is there.

July 13, 2017
A MyFibroTeam Member

My attack was so intense and has been intermittently going weak. Speech has also been odd, so has my gait and an annoying muscle spasm in my face. These are all new symptoms I am having checked out. I want an MRI because I suspect MS. Every flare up I have is getting worse with new symptoms each time.

July 22, 2017
A MyFibroTeam Member

yes! and getting worse. I hate even driving lately. have to relieve one hand or the other. Even typing is hard. Also my anxiety is through the roof. Good Luck!

July 15, 2017
A MyFibroTeam Member

I am so sorry, Amy. Well, I’m GLAD that you don’t have neck issues. That, of course, is good! 😉 I have had the tingly tongue too, but thankfully that was quite awhile ago. It really is mind boggling all of the strange symptoms that come and go with Fibro, isn’t it? My greatest peace came when, after the multitude of tests, which all came out fine, and after being diagnosed with Fibro, I came to accept it for the most part. I say for the “most part” because I haven’t really accepted yet that I can’t do all of the things I want to do mostly because of my lack of energy, but also because of the pain (stiffness & achiness).

August 20, 2018

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A MyFibroTeam Member asked a question 💭
Cullowhee, NC