On my vacation I caught myself losing words and slurring my words MORE than normal. Forgetting WAY more than normal. I know I have fibrofog for sure and it is TERRIBLE, but right before we left my husband said "man you are forgetting a lot lately". I wonder if I am getting Dementia! I'm serious I am really worrying about this....Dementia, Alzheimer's, something. I have had Fibromyalgia for many many years, I was diagnosed in 1996, but it was a long time before that! I know that Dementia can be… read more
@A MyFibroTeam Member I heard this saying to describe the difference between forgetfulness & Alzheimer's... "Alzheimers is not forgetting where you put your keys, it IS forgetting what your keys are for".
I wrote this about fibro fog hopefully it will help a little I have gone through it and still do sometimes. It's horrible and scary. Take care talk to the doctor if you havent already love to you D
Fibromyalgia, it's a large and somewhat misunderstood word, but take it from me it has more arms than an Octopus and it has the strength of a python. So I won't be able to cover all of that in one post, however, one of the questions I hear from fellow sufferers and that I have asked myself is "Why can't I remember my name!" Fibro Fog is a mysterious piece of this puzzle that has thousands of answers and yet the ones living with it can't answer the question themselves. A year ago I began to think I had Alzheimer's. In fact, I was getting more and more worried. I couldn't remember appointments or dates, what day of the week it was and finding words was worse than the first grade in Elementary school. I felt as though my life was one choppy text. My kids were starting to think I was aging at warp speed in front of their eyes or that I had lost some marbles.
Even in jest, I was wondering do I really want to get this checked out or is it nothing. I had heard of Fibro fog and had suffered since I had the disease but yet I still couldn't shake that feeling what if? I had done all my research, and still, I decided I needed to talk to my doctor
The Doctor looked at me patted me on the knee and said Deb this is just something we see very often but don't worry about it. I felt like asking how long I had to live. I proceeded to ask him so what do I do to make it better or not so aggravating. I went to my eastern medicine doctor/herbalist and found that sugar is an inflamatory which can also lead to worse fibro fog. Long story short I quit my affair with sugars started taking Coconut MCTs and today 4 months later I am better not perfect but better
My doctor gave me a useful way to find out whether I have dementia or other types of forgetfulness.
He held out my keys, put them in my hand and said "If you can't find these, or keep forgetting where you put them, that's normal forgetfulness. But if you are looking at them in your hand and cannot figure out what they are for, that is one sign of dementia and you should consult your doctor."
I found that useful. Hope it's useful to you, @A MyFibroTeam Member
OK brain fog for the past 5 days has had me asking if my sanity was finally going but thank goodness I have a great GP who sat me down gave me tissues to dry my tears and listened to me and then she went on line and looked something up and this is why she rocks as some of you know I had major surgery 6 days ago and the brain fog is due to the general anaesthetic and the length of time under also makes a difference. Such a relief to know this is not permanent and also the pain has increased dramatically since surgery all over not just wound site this also is normal. However she did tell me not to fight the brain fog because the harder you fight to get through it the longer it takes to go away and so you just go with it and you know she is right I could not have posted this 3 days ago but today at least the brain fog is finally lifting and the pain is slowly coming back to bearable hope this helps some of you and the key here is to find a GP who understands your condition.
I will forget mid sentence what I'm saying! I blank when people are talking to me!! I struggle finding words Very worrying sometimes xx