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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Minneapolis, MN

I am still seeking a diagnosis. I was curious how common it is for a person to have FM but not have much pain in relation to it. I have a lot of soreness, stiffness, and tender points but only a handful of occasions of pain that could be explained with FM.

I'm 33. when it comes to diet and exercise I have done so so. My weight snowballed between college and start of family. It has gotten to about pre college level. I don't smoke or drink so I think that works in my favor.

Ok, so on to my… read more

May 2, 2017
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Answer Summary

Members responded to someone wondering if their physically demanding job might be preventing fibromyalgia pain, with most agreeing that... Read more

Members responded to someone wondering if their physically demanding job might be preventing fibromyalgia pain, with most agreeing that staying active and limber does help manage symptoms, though the balance is deeply personal and symptoms can change dramatically over time. Several members shared that focusing on activity can temporarily mask pain, but overdoing it often leads to severe flare-ups days later, while others emphasized that rest can actually worsen symptoms and that gentle daily movement, even just 15-minute intervals or walking, has been key to managing fatigue and pain. A recurring theme was that fibromyalgia presents uniquely in each person and can shift unexpectedly, so what works now may not work later, making it essential to listen to your body, pace yourself, and work closely with a rheumatologist to find the right treatment approach.

A MyFibroTeam Member

My neurologist told me that I need to push myself to do some activity each day unless I truly have the flu because less activity can create a negative cycle which actually makes the fibromyalgia fatigue & pain worse. Once I was on medication to work with my central nervous system, I was able to start exercising more regularly & actually wake up before my alarm. This was huge for me because I wouldn't trust myself to wake up before 1pm without an alarm, many times sleeping up to 16 hours on the weekend. I also love to exercise & was told by my physical therapist that walking is the best aerobic exercise. Once I've pushed myself to get going, my pain & fatigue have been exponentially better.

May 5, 2017
A MyFibroTeam Member

Try to see a Rheumatologist.They will press your tender points in the right places, where the muscles aren't directly connected to joints or nerves - if you have 11 out of 18 sore points, the Doctor will probably send you for blood tests to do a process of elimination. When the Doc gets your results back, they may call you in to give you a diagnosis and prescription meds after asking you questions about your pains and general health and if you have severe exhaustion on most days. Hope this helps

May 3, 2017
A MyFibroTeam Member

The pain will fluctuate no matter what. Being active and staying limber helps. For most, it's about finding the right balance. Fibro is often caused by undiscovered issues that vary with each person. Fibro has a large set of symptoms and exibits itself in a unique way with each person it inflicts.

May 3, 2017
A MyFibroTeam Member

@A MyFibroTeam Member my experience was similar when I first saw rhuematologist. I was mostly just really sore but it only got worse after. My job was demanding and stressful so I think that's helped to take a toll plus plus I was experiencing serious anxiety and depression so I decided to take a break from working before I cracked. In terms of physical movement @A MyFibroTeam Member I noticed when focused on an activity I would not feel as much pain but once I stopped pain would hit like a tonne of bricks. So I had to make sure I didn't overdo it because I would then be unable to function days after. This was disturbing to me as I used to exercise regularly about 4 to 5 times a week though it had dropped off a bit because of that job.
But as stated this thing shows differently for everyone. Still it's good you can be physical. These days when I don't go out I try to do 15 min intervals about twice in the day, find that works for me, and when I feel good I try to do a full 40 min session.

May 3, 2017
A MyFibroTeam Member

I haven't been able to work on any type of physical therapy and/or activities because my fibromyalgia has become extremely chronic and I can't even have massages because I can't stand anyone touching me 😩😩

May 3, 2017

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