I'm thinking of starting a Facebook closed group for just us. I'm not the only one who is having trouble with this app. What do you think? Don't get me wrong...I'm thankful I found this app because I found all of you my fibromyalgia family! XOXO ♡♥♡♥
Answer Summary
Members warmly supported the idea of creating a closed Facebook group for the fibromyalgia community, with many expressing frustration over... Read more
I ran one once.. FibroAdults. I was one of the only males there and suffice to say, it got interesting, then out of hand so I left.. That's a story and a half that one.
@YvonneOhare-I think that's a great idea. Facebook closed group. It sure is worth a try. All for it.Terry
Nanas...It's not user friendly. It's hard to navigate. I have seen some comments about private messaging. We can't private message and some things just are to personal to put on here. I'm thankful for this site! I really am! I just felt God put it in my heart to start a closed group on Facebook for all of us. That's all! Hugs! God bless you abundantly! XOXO ♡♥♡♥
Good idea , I'm on one fibromyalgia support group , they are mostly in America, but it's good if you need to ask anything and if others suffer from the same , but I would defo join your group x
i like the idea. That way more people can see your questions. That's the one thing I don't like about this group (maybe I'm doing it wrong?) when I ask questions I don't get many replies....others ask questions and some get 50-60 replies. I guess it's how many groups you at in???