Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Stockport, UK

Earlier today I was sat sending an email and everything seemed to be on an angle, no matter how I held my head. I felt like the table was going down hill yet things weren't rolling off it. This feeling lasted for over an hour and thankfully hasn't returned, I still had the feeling once I stopped working on the computer. I was wearing my glasses at the time, my migraine had already flared at this point and I've never had this happen before. My GP is referring me back to my neurologist as I am… read more

March 10, 2017
 · 
Reactions

Answer Summary

Members responded to someone experiencing a frightening episode where everything appeared tilted at an angle for over an hour, with many... Read more

Members responded to someone experiencing a frightening episode where everything appeared tilted at an angle for over an hour, with many suggesting it could be vertigo or a labyrinthitis episode, especially since the person already suffers from vertigo. Several members shared their own similar experiences of feeling like the world was moving, tipping, or pulling them sideways, often accompanied by headaches, weakness, balance issues, and numbness, with some attributing it to fibromyalgia affecting the occipital nerves, medication side effects, or neurological conditions. A recurring theme was the importance of mentioning the episode to multiple healthcare providers including the GP, neurologist, and optician during an upcoming eye exam, while waiting patiently through the NHS referral process and hoping it doesn't return.

A MyFibroTeam Member

yes fibromyalgia can affect the occipital nerves which are the nerves located in the back of the neck that are connected to the head and eyes. if these nerves are affected by stiffness and pain it will also upset balance and spatial awareness ( the brains ability to judge distance) I when I informed my Doctor of this he recommended an appointment with an optician. hope this helps. good luck and best wishes. x

March 10, 2017
A MyFibroTeam Member

I had severe vertigo once when I had a head cold. Unfortunately, I was driving on the freeway and I tried to clear my ears by holding my nose and blowing. My ear popped or something like that and the whole freeway started going back and forth. It was sooo scary I was able to get off the next exit and got to a gas station. I didn't have a cell at the time so went to a phone booth to call someone. I tried to walk to the phone booth and gravity felt like it was pulling me sideways toward the side my ear popped. I couldn't even walk. By time anyone was able to get there, it was about over. It took nearly an hour. I just sat in my car spinning and trying not to throw up. Our bodies are very delicate. I never saw a doctor for this because it went away but I wonder if it affected my hearing as I was told years later I had lost some hearing in that ear. Interesting. Hope you don't feel like that again. It's awful. Hugs.

March 12, 2017
A MyFibroTeam Member

I honestly know how you geel. Even when you are walking you feel like you are walking on an angel. Headache. I think its vertigo. I had it for a few weeks. I had tingling in my face and it felt like warm water. Pins and needles down my arm, leg, hand and foot. I also had inner tremors to go along with it. I eent to the neurologist and they think its fibro. Good luck to you and hugs

March 11, 2017
A MyFibroTeam Member

Sounds a bit like labrynthritis???

March 17, 2017
A MyFibroTeam Member

It's so strange what on earth is happening to our bodies that they can't find an answer too. Thankfully so far this sensation or feeling what ever it is or was hasn't come back. X

March 16, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Charlottetown, PE

A MyFibroTeam Member asked a question 💭
Perth, AU