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A MyFibroTeam Member asked a question 💭
Bangor, UK

Hiya.. this is my first time posting here and I'm not even sure if it'll work! Lol but just a message to see, does anyone else suffer from Raynauds? It used to only occur in the same 2 fingers on each hand but now, this past week, my whole 2 hands are affected and I lose power in my hands until I can get them warmed up again! It's awful. Does anyone have any ideas recommended tips on how to help or ease the symptoms? T.I.A xx

March 2, 2017
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Answer Summary

Members connected over shared experiences with Raynaud's, describing symptoms that range from a few affected fingers to entire hands and feet,... Read more

Members connected over shared experiences with Raynaud's, describing symptoms that range from a few affected fingers to entire hands and feet, often accompanied by intense pain, burning, numbness, and color changes that can occur within seconds of cold exposure. Several members emphasized the importance of keeping the entire body warm rather than just the extremities, since Raynaud's is triggered by the body's protective response to cold, and recommended practical tools like good gloves, thick socks, hand warmers, and always having hot water nearby for quick relief. A recurring theme was that while there is no cure, proactive layering and protection can help manage flare-ups, with some members noting that Raynaud's often runs in families and is common among those with fibromyalgia.

A MyFibroTeam Member

Yes I have it too. I describe it as being alergic to the cold. And it hurts so bad!! Few fingers on each hand and few toes on each foot. Also ears! Ouch!
I never go out in the cold without good gloves and thick socks. My Raynaud's can come on in seconds. And it seems to run pretty strong in fibro patients.
Raynaud's also runs along the female lines in families.
xxxx

March 2, 2017
A MyFibroTeam Member

Probably peripheral neuropathy, I have that now in my hands and feet but I remember years ago having problems like this with my fingers first. All peripheral means is in the extremities(hands, feet, legs and arms) and neuropathy is nerve damage. The first time I heard this phrase, I was like "What in the world is that?"

March 2, 2017
A MyFibroTeam Member

I've had renauds for years. I wear good gloves and in the winter you can get the hand warmers to put in your gloves

May 15, 2017
A MyFibroTeam Member

My hands are white white and last to fingers in my right hand it starts off pins needles then goes completely numb and down my hand. Haven't been to doctors though it's hard to get appointment is this wot it could be? And wits the treatment for it?

March 7, 2017
A MyFibroTeam Member

yes I have it to, in both hands-fingers I always wear gloves and they still turn white I put my fingers under hot water till I can start feeling them again, doctors have told me there is no cure

March 4, 2017

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