Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For years i was seeing the same GP who every time i complained about pain, tiredness , et al,
told me it was all in my head and i needed a psychologist not pain meds
I more or less diagnosed myself, it was only due to a move that i got a new GP who immediately sent me to a pain clinc, that people started to believe in my pain
Have other people had doctor's who think fibro is in the head ?

March 1, 2017
 · 
Reactions

Answer Summary

Members overwhelmingly shared experiences of doctors dismissing their fibromyalgia symptoms as psychological or exaggerated, with many... Read more

Members overwhelmingly shared experiences of doctors dismissing their fibromyalgia symptoms as psychological or exaggerated, with many enduring years or even decades of misdiagnosis before finally finding a provider who listened and validated their pain. Several members described the profound relief of receiving an official diagnosis after long periods of being told their suffering was imaginary, with timelines ranging from one year to sixteen years before proper recognition and treatment. A recurring theme was the critical importance of self-advocacy, changing doctors when necessary, and the emotional toll of fighting to be believed while managing chronic pain and exhaustion.

A MyFibroTeam Member

@A MyFibroTeam Member i cried when i got my diagnosis as well , it was so much of a relief that the pain etc wasnt in my head , and having a name for it and finding other people who also had fibro was a revelation, i honestly thought it was just me
I have found that what ever ache pain and illness i have, fibromyalgia gets the blame x

March 2, 2017
A MyFibroTeam Member

It varies from each medical professional you see. The Dr's in my case always deem it to be mainly down to depression and anxiety. I had to challenge as to why it wasn't ever going away. All the symptoms don't sit under those headings. I still have issues when not depressed or anxious. It's took years of medications, consultants (some private), X-rays, MRI's, physio, acupuncture and chiropractors. Even went to see pain clinic consultant. Eventually it was a rheumatologist that took the time to listen, test and diagnose what was wrong. 16yrs it's took to get there. Incredible and they still fail to understand the stresses and strains it causes doing basic functions and tasks.

March 1, 2017
A MyFibroTeam Member

My husband died in 2013 and within 3 months I was down and it took a year for my diagnoses after several Doctors. I knew I had a connective tissue disease, RA and Osteoarthritis but I was extremely exhausted and in severe pain. At first I blamed it on being overwhelmed by the sudden death of my husband but my symptoms got worse and I got more, plus I simply could not think. My Son (39yrs.) decided I must be crazy or something, there was no way I could feel like that/this. He told me I was just wanting attention. Well, finally this year he has been trying to make a mend with me. He told me that a friend's Mother has fibromyalgia so I guess I'm not crazy after all, if someone else has it, I guess it is real.... So yes, people do not understand much less believe.

March 1, 2017
A MyFibroTeam Member

Some GP's are ignorant of the illness. 2 at my practice don't believe on it as there is no test or scan that can be done to get results for it. Yet my GP is very supportive and 4 others I've seen have been too. Telling me I mustn't just think pain is fibromyalgia I must get checked out to rule other things out. When I was told this is nearly cried, as when I was diagnosed in said to my mum I'm am just going to get brushed off now and told it's just fibro all the time. You have to find the right gp who is going to support you x

March 2, 2017
A MyFibroTeam Member

Oh yes! many doctors told me that it was in my head. One told me that because I was on ''wealthfare''(govern. pension) because I can't work and I had 3 children, proved by 4 specialists, he told me to go to work so maby I can do somethings of me, then maby my head won't search for a disease. But at that time I had already 30 surgery at my active. So I turn my back then went to see my uncle who was a delivery doctor, he's the one who knows me better, so he took my case, and even in 1982, there was no name in book for our disease, he said to me : you have fibromyalgy, he said fibro for fibers and myalgy for pain everywhere. He was a searcher and a doctor, and a teacher at Ste-Jeanne-D'Arc and St-Luc in Montreal. After that time with me, the fibromyalgy started to be here and there. So I have fibro since my 8 year old..for now 51 years. So don't let anyone tell you that it's in your head because it's not !!!

March 2, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭
south manchester uk