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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Reading, PA

Very personal question. I appreciate any input at all.

How has a lose of a family member effected you differently now that you have fibromyalgia?

February 17, 2017
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Answer Summary

Members opened up about how fibromyalgia has affected their experiences with grief, with many describing cycles of numbness and autopilot... Read more

Members opened up about how fibromyalgia has affected their experiences with grief, with many describing cycles of numbness and autopilot followed by physical crashes marked by intensified pain, exhaustion, and sometimes guilt for not being able to show up the way they once did. Several members shared that short-term medications like Xanax, Valium, or Lorazepam helped them get through funerals and acute grief, while others emphasized the importance of allowing themselves rest, going on antidepressants when needed, and leaning on supportive family and friends. A recurring theme was the frustration of having less energy to care for others during loss, the unpredictability of flare-ups tied to stress, and finding strength by honoring loved ones through living fully, staying present, and not dwelling on limitations.

A MyFibroTeam Member

I lost my dad 10 years ago now of pancreatic cancer they call it the slow death and yes it was slow I watched my dad go from a 14 stone man to half his body weight he was always smiling and keeping his chin up but deep inside me the pain was agonising me and my sister nursed him to the end before he died he told me to live life to the full cause you never know what's round and that's what I do now I struggle don't get me wrong but I don't sit and dwell anymore I do what I can and my family are very supportive and so are my work mates as long as I'm smiling like my dad was everyday till the end my fibro goes to the back of my head and I just deal with it their is more people that are worse off then me so I thank God I can still work still drive and have good friends

February 18, 2017
A MyFibroTeam Member

Sometimes I hurt more. Due to the stress. It depends on the family member that I lose. Like if/when I lose my mom it will be devastating. And I will lose that support system. But so far it's only been an aunt, uncle, and grandparents.

February 18, 2017
A MyFibroTeam Member

The only difference it has made is in my energy and ability to be there and do everything for everyone like I once did. And that's frustrating. So sorry for your loss.

February 17, 2017
A MyFibroTeam Member

I don't think it's made a difference. I lost my mother 2 years ago, and wasn't able to travel to her funeral (not for Fibro-related reasons). I don't think Fibro made any difference to my reactions.

February 17, 2017
A MyFibroTeam Member

My family is supportive. I am so glad that they are!

February 17, 2017

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