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Botox For Headaches

A MyFibroTeam Member asked a question 💭
Reading, PA

I need help my friends
Since fibro I started get serve chronic daily migraines and tension headaches plus a new one I think cluster headaches
My doctor wants me to do botox n my insurance will cover it. But I'm scared to do to it.
I got lidocaine shots in my neck n got kinda sick n had pain for awhile.
I've read that neck pain from other muscles working n headaches r very common side effect n that it's pretty bad. That doesn't sound good.
Has anyone had this done? Any input would be great.… read more

January 17, 2017
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Answer Summary

Members shared mixed but hopeful experiences with Botox for chronic migraines triggered by fibromyalgia, with several reporting significant... Read more

Members shared mixed but hopeful experiences with Botox for chronic migraines triggered by fibromyalgia, with several reporting significant relief, including one member whose migraine frequency dropped from 15-20 days per month to just 8, and another whose aunt has been migraine-free for over 20 years after treatment. Many members acknowledged that the injections themselves can be uncomfortable and may cause temporary flu-like symptoms, neck grinding, or a migraine the day of treatment, but emphasized that the potential benefits often outweigh the short-term discomfort, especially since results vary widely from person to person. A recurring theme was the importance of gathering as much information as possible, trying the treatment with realistic expectations, and exploring complementary approaches like dietary changes, sleep improvements, medications such as amitriptyline or Maxalt, chiropractic care, or treating underlying conditions like teeth grinding or sleep apnea.

A MyFibroTeam Member

I've been on amitriptyline for years now n it hasn't taken my memory of anything. Just helps the headaches the fibro n sleep

January 19, 2017
A MyFibroTeam Member

I got a lot of migraines as well. I take Amitriptyline for sleep and pain, but it also helped with my migraines.

January 22, 2017
A MyFibroTeam Member

so far I have been through one round of Botox injections and I am looking forward to getting the next round because already I can feel the difference in the severity of the migraines and headaches I was experiencing everyday I still have some pain headaches but they are not as bad as they were and by what the dr says with the second set of injections I should be able to see how much of a difference the Botox will make for me. Gentle hugs to all

January 21, 2017
A MyFibroTeam Member

please be careful , my hand to GOD they really messed me up ! love prayers going out to you always blessing's i send to you! always michele

January 19, 2017
A MyFibroTeam Member

I know a few people who get Botox injections for migraines every 3-4 months with great results. One of them has MS and had migraines every day. She now only gets 2-3 per month and has had no side effects from the injections. Botox has also been approved for back pain, supposedly, so I do want to check into that since I was able to drastically reduce my migraines with dietary and sleep changes. It is miserable to live with frequent migraine. I used to get 22-25 per month, but now typically get closer to 10 per month. I fix those with Maxalt. Personally, I would give it a try! You don't have much to lose and so much to possibly gain. There are side effects, but that is also true with the medications.

January 19, 2017

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