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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Austin, TX

Does anyone's body temp get low? I normally run 97.5 however, sometimes I will get extremely cold out of nowhere, I'll check my temp and it will read 96.0 to 95.5. Wrapping myself in a heated blanket helps to bring it back up, but my feet remain ice cycles. When I was a teenager, I was rushed to the ER in a few different occasions because without warning or reason (like being somewhere cold etc) I started shivering, became really disoriented and fingers were purple/blue. My temp would be way low… read more

January 2, 2017
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Answer Summary

Members responded to a question about experiencing unusually low body temperatures and sudden chills by sharing that many of them also run... Read more

Members responded to a question about experiencing unusually low body temperatures and sudden chills by sharing that many of them also run colder than normal, typically ranging from 96 to 97 degrees, with some experiencing sudden drops that require heated blankets or layering to recover. Several members offered practical guidance, including discussing symptoms with a doctor to rule out anemia (which iron supplements can help), requesting testing for Raynaud's disease or thyroid disorders like hypothyroidism, and keeping a symptom journal to help medical providers identify patterns. A recurring theme was that fibromyalgia often causes heightened nerve sensitivity and difficulty regulating body temperature, leading to sudden swings between feeling freezing and overheated, with many finding relief through lightweight layered clothing, heating pads, and avoiding pressure on sensitive skin.

A MyFibroTeam Member

very normal in fibro all our senses are more heightened from extremes of cold to heat our nerves are much more sensitive and the cold wind really goes through us. Wearing lightweight fleece in layers is what I find works as too heavy a coat or jumper puts pressure on our skin which triggers more pain.

January 5, 2017
A MyFibroTeam Member

A low temp is often associated with hypothyroidism, which is something I suffer from. I don't know if it's common with FM too. Would be good to find out though.

January 4, 2017
A MyFibroTeam Member

I would mention to the Dr you may be anemic and if you are iron would help. If you have a Rheumatalogist you can ask to be tested for raynauds disease if you think you have the symptoms. It is usually a hereditary problem. Please make sure you check with your Dr. My Daughter is disabled and can not control her body temperature and each person is different.

January 3, 2017
A MyFibroTeam Member

My room is usually in the 18-21 C range with occasional difference of no more than 2 degrees either way... I have an Age UK (charity) card thermometer which tells me 21 C is the ideal living room temp and 18 C is likewise for a bedroom. As for my body temp, I have no way of telling.
Yet even wearing my comfies (Sherpa pants, t shirt and thick socks) with a thick fleece dressing gown on top I get inexplicably cold... often even while feeling sweaty/greasy which would point towards definitely being warm enough.
Strange... but I guess thems the breaks (and weirdness) with Fibro.

January 3, 2017
A MyFibroTeam Member

i cant wear jeans anymore ,it hurts

January 5, 2017

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