When I do any kind of activities I get overheated or just being in a hot stuffy room or out in the hot weather I get overheated. I get fevers, headaches, nauseated sometimes followed by vomiting and I sweat a lot.
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Members connected deeply over the frustrating experience of losing control over their body temperature regulation, with many describing sudden... Read more
Me too. Although I prefer winter. At least I can layer up. Summer can be a nightmare. But it doesn't matter what the weather is doing really. My head can be burning up and my feet freezing. Several light cotton layers seem to be best for whipping off and on..... and off and on .... and off and on .....
Yes.. my body thermostat is permanently out of order since fibro. I'm hot, I'm cold, I'm on fire inside, I have sudden chills, I'm perspiring profusely, my head is boiling.."quick someone throw a bucket of ice water on me"..ugh. I have a fan with a remote control to turn the fan off and on, high and low. This goes on all day and all night. Night time is the worst..blankets get tossed off and on, along with fan adjustment. I rarely feel a comfortable body temperature that allows me a restful nights sleep. I wake up achy, cold and exhausted.
Well @UnderSeige, I'm 67 and am well past "the change" so age doesn't necessarily mean anything. I like your humor though :-). My temp is all over. I can be freezing one minute and hot and sweaty five minutes later. I sweat through all layers of clothes and can soak my pillow and sheets at night while having ice cold feet. It's super frustrating.
I have had Fibro since 1991, but did not have any idea at all what burning pain was.
Then in 2011, the P.T. (someone who worked with Fibro patients), was not aware of his own strength and completely destroyed my right shoulder. That's when I experienced the burning pain for the very first time. Profuse perspiration began. I can pinpoint this to the exact day it started.
In 2014, I caught the corona virus. My Dr prescribed the inhaler Symbicort. I got worse and told the Dr about severe chills/heavy perspiration and various other problems. Dr told me to continue with Symbicort. Every time I used the Symbicort I got worse. Finally, after I did some research, learned I was having a bad reaction to this medication. Dumped that Dr,
Since then, I can switch between burning up and chills numerous times in one day. The burning up/chills switch is most predominant in the Winter. The burning up is year round, from any type of exertion when using my right hand/shoulder (and I'm right handed).
Thank you all for commenting on this post! The comments have been very helpful because it is nice to know that I am not the only one going through it. it really sucks that we all have these different symptoms to deal with.