Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Bayard, NE

When I do any kind of activities I get overheated or just being in a hot stuffy room or out in the hot weather I get overheated. I get fevers, headaches, nauseated sometimes followed by vomiting and I sweat a lot.

January 2, 2017
 · 
Reactions

Answer Summary

Members connected deeply over the frustrating experience of losing control over their body temperature regulation, with many describing sudden... Read more

Members connected deeply over the frustrating experience of losing control over their body temperature regulation, with many describing sudden swings between freezing cold and profuse sweating throughout the day and night that disrupt sleep and daily activities. Several members shared practical coping strategies including dressing in light cotton layers that can be easily removed and added, using fans with remote controls for quick adjustments, changing clothes multiple times daily, and keeping extra socks on hand during work or errands. A recurring theme was the relief of discovering they weren't alone in this embarrassing and exhausting symptom, with many noting how winter brings particular challenges while summer heat can feel unbearable regardless of the actual temperature.

A MyFibroTeam Member

Me too. Although I prefer winter. At least I can layer up. Summer can be a nightmare. But it doesn't matter what the weather is doing really. My head can be burning up and my feet freezing. Several light cotton layers seem to be best for whipping off and on..... and off and on .... and off and on .....

January 4, 2017
A MyFibroTeam Member

Yes.. my body thermostat is permanently out of order since fibro. I'm hot, I'm cold, I'm on fire inside, I have sudden chills, I'm perspiring profusely, my head is boiling.."quick someone throw a bucket of ice water on me"..ugh. I have a fan with a remote control to turn the fan off and on, high and low. This goes on all day and all night. Night time is the worst..blankets get tossed off and on, along with fan adjustment. I rarely feel a comfortable body temperature that allows me a restful nights sleep. I wake up achy, cold and exhausted.

January 3, 2017
A MyFibroTeam Member

Well @UnderSeige, I'm 67 and am well past "the change" so age doesn't necessarily mean anything. I like your humor though :-). My temp is all over. I can be freezing one minute and hot and sweaty five minutes later. I sweat through all layers of clothes and can soak my pillow and sheets at night while having ice cold feet. It's super frustrating.

January 3, 2017
A MyFibroTeam Member

I have had Fibro since 1991, but did not have any idea at all what burning pain was.

Then in 2011, the P.T. (someone who worked with Fibro patients), was not aware of his own strength and completely destroyed my right shoulder. That's when I experienced the burning pain for the very first time. Profuse perspiration began. I can pinpoint this to the exact day it started.

In 2014, I caught the corona virus. My Dr prescribed the inhaler Symbicort. I got worse and told the Dr about severe chills/heavy perspiration and various other problems. Dr told me to continue with Symbicort. Every time I used the Symbicort I got worse. Finally, after I did some research, learned I was having a bad reaction to this medication. Dumped that Dr,

Since then, I can switch between burning up and chills numerous times in one day. The burning up/chills switch is most predominant in the Winter. The burning up is year round, from any type of exertion when using my right hand/shoulder (and I'm right handed).

January 3, 2017 (edited)
A MyFibroTeam Member

Thank you all for commenting on this post! The comments have been very helpful because it is nice to know that I am not the only one going through it. it really sucks that we all have these different symptoms to deal with.

January 7, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Seattle, WA

A MyFibroTeam Member asked a question 💭
Greenville, SC

A MyFibroTeam Member asked a question 💭
Laredo, TX

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In