Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Schertz, TX

My RA wants me to see a neuro doc for incresed sensitivity issues. I do not want to be put on more meds. Anyone else see a neuro?

November 6, 2016
 · 
Be the first to react

Answer Summary

Members shared their experiences with neurologists for fibromyalgia-related sensitivity issues, with many finding value in having a... Read more

Members shared their experiences with neurologists for fibromyalgia-related sensitivity issues, with many finding value in having a neurologist on their care team since fibromyalgia affects the nervous system, though several emphasized the importance of communicating medication concerns upfront to explore alternatives like injections, nerve blocks, or physical therapies. Several members discussed their personal medication journeys, with Lyrica emerging as a commonly recommended option for hypersensitivity (taken at the lowest effective dose to minimize side effects like coordination issues), while Cymbalta was frequently mentioned as poorly tolerated, and non-medication approaches like TENS units, aqua therapy, massage, and anti-inflammatory supplements like turmeric were highlighted as helpful complementary strategies. A recurring theme was the challenge of balancing symptom management with medication hesitancy, especially among nurses in the community who understand over-medication risks, and the emotional weight of managing multiple specialists while navigating career decisions and daily life with chronic pain.

A MyFibroTeam Member

I know how you feel. After years of running around, dealing with patients issues, staff issues and of course management issues, to being unable to move or think straight is very overwhelming. I had to stop working because I could not trust myself to make the correct decisions for those under my care. You will know when to stop working. Be kind to yourself and trust your self. Hugs.

November 6, 2016
A MyFibroTeam Member

Thank you Nyks
Yes, I already see endo for Hoshimotos and the RA, who dx my fibro, and my GP loves me but says I am so complicated that if it is not my regular physical, flu shot, or minor cough straight to specialist I go.

November 6, 2016
A MyFibroTeam Member

Yes I go every six months he finally put me on Galantamine I dint think it was working but if I miss one I get leg cramps and feet to wear I pass out ! I quess it must be working!

November 6, 2016
A MyFibroTeam Member

Absolutely the best referral I've had throughout the past 25 years. There were Botox injections of my entire scalp & forehead for 1 year, that dramatically lessened optical migraine syndrome. RF procedure also has had lasting results in mobility & stopped sharp pains in my cervical spine. Also, ~once/year I have sciatic nerve injections of the hips & it's been liberating. They are the only ones to prescribe muscle relaxants & narcotics should I become desperate with pain. I've had the same narcotic Rx x2years without a refill, plenty left. Just knowing it's there gives me peace of mind as I've struggled over the years past hopelessly & desperately clenched in pain & broken sleep cycles. A word if caution here: most neurologiss won't treat fibromyalgia patients so just give them one problem at a time to deal with. For example, migraine headaches, neck, back, or joint ussues. Hypersensitivity is contained by Lyrica for me, practically the only approved drug for fibromyalgia. Just make sure you take the lowest possible dose that's effective for you. Dr's like to start high on this one but because most of us are sensitive to average dosages, it can result in marked side effects like dropping things, coordination issues. They go away immediately when lowering the mg amt. Lyrica is the one drug in my arsenal I'd fight to keep!

November 6, 2016
A MyFibroTeam Member

I have a neuro but I only see him for my migraines. If you don't want meds let them know and see what aalternatives they have. There are many people who do not like meds. I had an injection done and then another 3 months later as a block for my neck pain. Maybe they can offer some type of shot that wouldn't be an everyday pill kind of thing. Just a suggestion

November 6, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Dunfermline, UK

A MyFibroTeam Member asked a question 💭
Terrell, TX

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In