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Anyone Seeing A Neurologist?
A MyFibroTeam Member asked a question 💭

My RA wants me to see a neuro doc for incresed sensitivity issues. I do not want to be put on more meds. Anyone else see a neuro?

posted November 6, 2016
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A MyFibroTeam Member

I know how you feel. After years of running around, dealing with patients issues, staff issues and of course management issues, to being unable to move or think straight is very overwhelming. I had to stop working because I could not trust myself to make the correct decisions for those under my care. You will know when to stop working. Be kind to yourself and trust your self. Hugs.

posted November 6, 2016
A MyFibroTeam Member

Thank you Nyks
Yes, I already see endo for Hoshimotos and the RA, who dx my fibro, and my GP loves me but says I am so complicated that if it is not my regular physical, flu shot, or minor cough straight to specialist I go.

posted November 6, 2016
A MyFibroTeam Member

Yes I go every six months he finally put me on Galantamine I dint think it was working but if I miss one I get leg cramps and feet to wear I pass out ! I quess it must be working!

posted November 6, 2016
A MyFibroTeam Member

Absolutely the best referral I've had throughout the past 25 years. There were Botox injections of my entire scalp & forehead for 1 year, that dramatically lessened optical migraine syndrome. RF procedure also has had lasting results in mobility & stopped sharp pains in my cervical spine. Also, ~once/year I have sciatic nerve injections of the hips & it's been liberating. They are the only ones to prescribe muscle relaxants & narcotics should I become desperate with pain. I've had the same narcotic Rx x2years without a refill, plenty left. Just knowing it's there gives me peace of mind as I've struggled over the years past hopelessly & desperately clenched in pain & broken sleep cycles. A word if caution here: most neurologiss won't treat fibromyalgia patients so just give them one problem at a time to deal with. For example, migraine headaches, neck, back, or joint ussues. Hypersensitivity is contained by Lyrica for me, practically the only approved drug for fibromyalgia. Just make sure you take the lowest possible dose that's effective for you. Dr's like to start high on this one but because most of us are sensitive to average dosages, it can result in marked side effects like dropping things, coordination issues. They go away immediately when lowering the mg amt. Lyrica is the one drug in my arsenal I'd fight to keep!

posted November 6, 2016
A MyFibroTeam Member

I have a neuro but I only see him for my migraines. If you don't want meds let them know and see what aalternatives they have. There are many people who do not like meds. I had an injection done and then another 3 months later as a block for my neck pain. Maybe they can offer some type of shot that wouldn't be an everyday pill kind of thing. Just a suggestion

posted November 6, 2016

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