Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Staunton, VA

Has anyone actually gotten disability for fibro and chronic fatigue? I go before the judge tomorrow. I've been turned down twice. Have decided if I don't get it. I'm not trying anymore. To stressful.

October 24, 2016
 · 
Be the first to react

Answer Summary

Members shared their hard-won experiences navigating the challenging and often draining process of applying for disability benefits for... Read more

Members shared their hard-won experiences navigating the challenging and often draining process of applying for disability benefits for fibromyalgia and chronic fatigue syndrome, with many emphasizing the critical importance of hiring an attorney who specializes in disability cases and can help compile extensive documentation. Several members described their own journeys, ranging from one approval on the first try to others fighting for years through multiple denials and appeals, with some finding success by including additional diagnoses like diabetes complications, IBS, or mobility issues alongside fibro. A recurring theme was the emotional and physical toll of constantly justifying an invisible illness to a system that feels designed to wear people down, balanced by fierce encouragement not to give up and reassurance that fibromyalgia is increasingly recognized as a legitimate disabling condition.

A MyFibroTeam Member

OMG Rosslyn...I am so sorry. Get an attorney immediately. I would highly suggest anyone wanting to go on disability to get one. They can also guide you and remind you about appointments, etc.
I did not get my disability for fibro. It was a component but how I got it was from the diabetic gastropareisis (delayed emptying) That messed with my blood sugars and ability to take the correct amount of insulin. I also had hypoglycemic unawareness and got it because of that. If you have diabetes you need 2 things diabetes related to apply. We also used chronic pain but never used the word fibromyalgia. I think in my parts, at the time, they thought fibro was more of any excuse. But, if you have a good attorney, I think it makes all the difference. There were references to chronic pain, tests, inability to work, etc. But I do believe I got it because we bombarded them with paperwork. There is no way anyone could go through it all. So thats my suggestion. If you have any other illnesses, your attorney should request the reports. If you pile everything together, it may help. Remember, if you have an attorney, you only pay them if you win, and they take the money right out of the check so you never see it. Please keep us informed!

October 24, 2016
A MyFibroTeam Member

Last year Fibromyalgia received its own diagnosis code. (10/1/15) ICD-10-CM. It is recognized by the national center of health. They said that the code improves the chances for application for disability benefits

October 28, 2016
A MyFibroTeam Member

Yes it is very debilitating. I'm glad you got it! I guess I'll know in a few months or sooner I hope!

October 25, 2016
A MyFibroTeam Member

Wow am sad for you. I'm not an attorney, but I worked in Risk management for a large school district. We had people who went out on fibro, and they had a fight on their hands. Get an attorney. Work comp can delay a case ...and it's a game they play..sorry to say that but I was behind the scenes. Get an attorneythat is aggressive. Document everything, any phone conversations with employer follow it up with a conformation. Furthermore look and see who wins these cases. Word of mouth is good, or I have gone on the internet. Best of luck to you, just remember it is a long process, and I pray you get the resolution you are looking for. There will be a light at the end of the tunnel. I am praying for you.

October 24, 2016
A MyFibroTeam Member

I have my hearing in December. However I have other issues in addition to Fibro, you need a GOOD lawyer. Your issues shouldn't have happened, so sorry this happened to you

October 24, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Seattle, WA

A MyFibroTeam Member asked a question 💭
Wetumpka, AL

A MyFibroTeam Member asked a question 💭
Lansing, MI