Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Canton, GA

Does anyone have MPS with fibromyalgia? Also do you have pain in different areas if your daily? I seem to with exception of my hands and lower
legs.

October 11, 2016
 · 
Be the first to react

Answer Summary

Members confirmed that myofascial pain syndrome often occurs alongside fibromyalgia, creating what some called a double pain experience with... Read more

Members confirmed that myofascial pain syndrome often occurs alongside fibromyalgia, creating what some called a double pain experience with flares that can strike anywhere in the body and make even light touch unbearable. Several members shared practical relief strategies including heat therapy through hot showers or hot packs, myofascial massage techniques, specific exercises, and osteopathic manipulation for trigger points. A recurring theme was confusion around diagnosis, with many noting that doctors sometimes lump MPS into fibromyalgia or don't understand the difference between trigger points and tender points, leading members to carefully choose their medical teams and advocate for proper treatment.

A MyFibroTeam Member

@A MyFibroTeam Member I have myofascial pain syndrome also. Was initially diagnosed with MPS.

Noticed that you are an RN as well. There seems to be a lot of us nurses here. Probably because many of us share info naturally. I don't know about you but I can't stand seeing misinformation that others are reading. I try to always write a disclaimer..that's my experience, never stop any meds without checking with your doc, etc.

Anyway getting back to MPS my pain has been everywhere except my abdomen. My pain dr. said there are many physicians who lump it into fibro. Many don't know trigger points from tender points.

I am lucky. I've never had a dr say push through the pain. Whenever I've tried to push thru the pain all I get is more pain. I've had this 30 years. I've fired a few dr because they couldn't be openminded or even refer me.

As n ICU nurse I had contact with many dr. I chose my team carefully. Tomorrow I see my DO for manipulation. That reminds me. It sounds like you have TMJ or something similar. My osteopath will do soft tissue manipulation because my teeth aren't lined up and gives me pain.

It's been about 2 months since you posted. I hope you feel better now. Also I'm a retired RN. It helps to be able to rest as soon I twist, pull, spasmed, etc..

November 29, 2016
A MyFibroTeam Member

@A MyFibroTeam Member Yes I have taken Lyrica for many years. The only med that helps me get out of bed. It has a lot of side effects. I have memory problems all the time plus Fibro Fog. I guess you could say we have "double trouble."
John 3:16

October 11, 2016
A MyFibroTeam Member

Hi Gail, yes; I've been on Lyrica since 2010 and I also have impaired memory. We are not sure if it's the Lyrica because I take numerous other medications and I've had minor problems with my memory for a long time.

October 11, 2016
A MyFibroTeam Member

No thank the good Lord I don't have that, but
I have numerous other issues with pain.
The Lyrica seems to help with my pain, but
I'm wondering if my memory problems r
Coming from the Lyrica. It is one of the side
Effects. Has anyone on Lyrica had memory
Problems?

October 11, 2016
A MyFibroTeam Member

I have MPS diagnosed 28 years ago by chronic pain specialist. My other docs started using /fibro possibly because they know /fibro better. I do have both and I have had pain everywhere at one time or another.

October 11, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Redmond, OR

A MyFibroTeam Member asked a question 💭
St Helens, UK