Lately, a lot of us Fibromites have been thru so much negative, so I thought if we named just 1 provider, collectively we could reach 100,000 names. If we put a name here and under our providers list, we could watch it grow?? Anyone not in it we proceed with caution.
Well hi @A MyFibroTeam Member, ahh shucks. I'm turning red. Heck, I ain't no Angel but putting me among them feels great. I try hard to show people that they deserve love no matter how fast they can walk, fall asleep anywhere, and is an artist at disappearing before there eyes bc if pain starts to rear its ugly head, we don't want to call attention to ourselves with scream, moaning, crying .....etc.just cause I feel like hell, I don't want to show it. I love my makeup and good at it. Who says we want to be seen in comfy bed clothes, looking like we hadn't slept in a month......etc. Us Fibromites strive to look and feel positive. It makes us feel good when we get dressed up to go out, because after all we can't go outside all the times we want. We are warriors, don't mess with us. Hugs,@A MyFibroTeam Member
As provider to me is a person, place, or business that specializes in Fibromyalgia, believes in the reality of our disease or who is friendly to us Fibromites like my docs secretary. My sons are professionals that understand Fibromyalgia and accepts us. They love me and are compassionate to me, all of me. I am a provider to you, I love you for accepting me and sharing my ups and downs. I have a vast knowledge of Fibromyalgia since diagnosis was winter of 1995. At that time Quebec kept it a quiet, denying us a disability pension we paid into but I was finally accepted without even 1 rejection. I met a ER doc doing tests on my heart, he asked many questions and told me to contact Dr. Bellevance in Greenfield Park, Montreal. He explained I had chronic fatigue immune dysfunction syndrome then later I also had Fibromyalgia. He lived far from me but I was able to help teach my doctor whom had a trust with me. From there I used myself as a research subject, I enlisted my name as a contact with the C.D.C Atlanta, Georgia so anyone world wide could talk with me. I wouldn't even accept my disease till a Scientist from the C.D C. called me out of the blue explaining that they were diseases of real nature, not psych at all. I kept my condition as a secret because Quebec wouldn't recognize it,later sending all health care professionals a short letter stating now Fibromyalgia does exist but in their opinion is a mental health issue. I tried to keep it a secret because my friends wanted what i could do for them not reciprocal, then out of the blue i read an article, then I found my wonderful friends here. I'm no longer keeping Fibromyalgia/Chronic Fatigue Immune Dysfunction Syndrome a secret. It was nice my children finally said my diseases name. I told them I'm not playing perfect no more, just me, then I cried, its my reality no more pretending. I'm me, THANKS my Fibromites for finding me. I will ever be grateful. If you travel I have a door that swings both ways. You have given more kindness (in 3 mths) to me a stranger (than 23 yrs )of friends not believing in F.M..Being called a leper few years back sent me emotionally down a spiral. I'm not perfect so if I say anything you don't understand, talk to me. My gentle delicate heart can't take anymore rejection. Let's do some positive things in our rotten days thats life affirming.SENDING gentle, loving hugs.BLESSINGS, may your God be with you in your comings and goings, give you peace to handle your days, in work and leisure, in your sleeping while we await patiently for a cure for Fibromyalgia and hoping to end all horrific painful diseases world wide! I love you.From me @A MyFibroTeam Member
Sherlyal Angel. I am so sorry for what you have gone through on life. I pray that you will let yourself know you are a very special ANgel and God knows what these bad people have done to you. You have become my Angel and I Love you with all my heart. Just know my arms are holding you right right now and helping you to forget the bad times and looking for brighter days ahead. We can chat any time you want. Love you Angel
Hi sheryalAngel, It seems Im close to you on surgerys. I get along with most people, I always have, but once in awhile one comes across and dosnt like me but won't say why but I figure out why. It's usually something really stupid and I just let it go. I have a lady here that's that way. I talk to her like I do everyone but it dosnt matter. What it comes down is we are both close to one friend and she is afraid I will do something to there friendship. I don't cause I wouldn't hurt my friend in the middle. She is a very sweet friend to me. But this happens to everyone sometime in life, and you have to learn to deal with it. If I have done or said something wrong to anyone I do appligise. My parents brought me up to say your sorry when words or actions are wrong. But with living in all the places we have lived being in the military sometimes you have to take action for people to understand what they are saying or doing is not right. I have known people who thought they were so sick that they thought there life was comming to an end, but all they were doing was trying to get attention. I've seen this so much, especially working for the government in Washington DC. It got to the point where higher ups were asking for Dr's sheets on their medical conditions. Which they found out was being facked by their friends. I even had to do this because they thought I was racking my fibro pain. They even called my Dr. I've had alot of experience with people over the years and some it's hard to tell if it's real. I have appligized to for what I have said on here.
' I have found trying to stay upbeat and liking yourself is most important than what others might think of you. If everyone thinks I don't care about how they feel in this sight please say so. After reading alot of everyone's stories I realize I must still be in the begging of fibro even tho I've had it for almost 25 yrs. I like being happy and not dwell on the pain I have or how bad I feel. Last night I was going into a flair because I got my feelings hurt. Today, I'm on top of things and not letting not letting what I was told to my face yesterday bother me. Let it go, be happy, lifes to short to let anyone or anything bother you. If you hurt I will give you hugs, if you cry, I would be the one there to hold you. Until you feel better. I love people, regardless of color, origin or the man in the moon. If you want to chat I'm here. Love and big soft hugs to all of you. You have become my family a family sticks together.
Dr. Gregg Diamond; Sherman, TX pain doctor and one that doesn't deny fibromyalgia is real.