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A MyFibroTeam Member asked a question 💭
Cincinnati, OH

I have noticed that I have a reduced sense of smell lately. Usually the smell of icy hot is way too strong for me. My husband put it on me and I couldn't smell it. I stuck my nose right up to the top of the bottle and could barely smell a hint of it. I had noticed a reduction in taste but my sense of smell seemed fine. Not any more... Thoughts?

September 12, 2016
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Answer Summary

Members connected over experiencing unpredictable changes in their sense of smell, with some describing loss of smell while others reported... Read more

Members connected over experiencing unpredictable changes in their sense of smell, with some describing loss of smell while others reported heightened sensitivity or phantom odors like burning or baking scents. Several members shared that their sensory symptoms fluctuate unpredictably, with smell, sight, taste, and touch all seeming to come and go in waves, sometimes lasting weeks or months. A recurring theme was the difficulty of explaining these invisible symptoms to others and the shared uncertainty about whether these changes are related to fibromyalgia, medications, or nerve damage.

A MyFibroTeam Member

I actually have the tendency to smell burning all the time. I am constantly looking around the house to see if there is paper burning, and even ask my daughter if she can smell it. It's weird and I don't quite know what to make of it. So I guess I get phantom smells. Loss of smell could be if you have used chemicals for cleaning that have damaged the receptors temporarily, but it is not something that I have heard of related to fibro.

September 13, 2016
A MyFibroTeam Member

Hallo. Sorry to hear that you are in distress. I also seem to have a sense of smell that are way too good for my own health, and at other times I can have the Handy Andy right up under my nose when cleaning without even smelling the ammonia. So, I also came to the conclusion that just like my eyesight is sometimes blurry and sometimes marvellous, my sense of smell as is other senses also comes and goes. Sometimes the pain is unbearable, while at other times I cannot feel my feet and hands. Once in a situation where I could not feel my feet I had to go up a couple of flights of stairs. I was rather scared, but thought the quicker I move the less chance of hurting myself. So up up and away I went. Until a lady came from below with my shoe in her hand. It was very embarrassing when she told me she found my shoe at the bottom of the stairs, and I was already on the fourth floor. How do you explain that you cannot feel your feet thus could not feel when you lost your shoe. Since then I changed to much closer fitting and closing shoes.

September 13, 2016
A MyFibroTeam Member

Hi Vicki;
For me, my senses tend to play "tag". One day poor smell, next day, drive into a lamp post. Let it ride out for a few weeks. See what happens. Just don't get cocky and go running around yelling "Look! I can stick A535 right up and nose and it won't even phase me!" Because one day, your nose will work again, but your eyes might be blurry and you won't find your way to the vodka.... I mean Emergency Room. DON'T try to rinse it out!!! Remember, you will always have a keen sense of pain. In case anyone reading this does not know, never never try to wash off anything like A535, It opens up the pores and the rub soaks in way too deep. You can't reach that kind of pain. Alway just wipe off what you can, and Suck it Up, Nancy.
Always a pleasure :-)
MJ

September 12, 2016
A MyFibroTeam Member

I only smell Chelsea Buns baking. I apparently damaged the nerve that tells you what you are smelling.

September 19, 2016
A MyFibroTeam Member

I get what your saying, my sense of smell had gotten so strong that I can smell the stink of the pipes in a bathroom or kitchen and it's baddddd! This seems to come and go, it could be like it for weeks and then go away for months. I would rather not be able to smell things. I don't know if this is FM but I'm thinking it is because Dr's can't figure it out. Hugs

September 12, 2016

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