Answer Summary

Members connected over the shared and often confusing experience of losing their sense of smell with fibromyalgia, with many describing how it... Read more

Members connected over the shared and often confusing experience of losing their sense of smell with fibromyalgia, with many describing how it comes and goes unpredictably or only certain scents register. Several members shared similar struggles with taste loss, sensitivities to strong odors like perfume or cigarette smoke that trigger illness, and concerns about whether the symptom might signal something more serious like MS. A recurring theme was relief in knowing they weren't alone, with reassurance that the symptom may improve over time and encouragement to focus on staying active and finding small positives even when symptoms feel isolating or frightening.