All the fibro drugs I went off were 100 times worse than fibro - I have been drug free now for 4 years and I would not wish this on my worst enemy. Doctors dont tell you that eventually you will have to stop, that the drugs can cause major symptoms in the future or the hell of getting off them

Go to the ER now!!!!!!

Thanks for the help, advice and support. Yes, it was my choice to go off this poison and all the side-effects. I knew it would be hard. My Dr said he'd monitor me carefully and since I wanted to do this at home with my small, but mighty support system. Yet, when I call, I wait days for a return call from his nurse saying he would be out of town for a week and a half. He could have at least left my file with one of his associates. I'm down to 25mcg, now, and my body's "waking up" to all the pain, fibro effects, and withdrawals. It's just haRd and I can't always depend on my husband to be supportive or considerate of my condition when he's in one of his a**hole moods. He takes no prisoners. The stress has made it much worse.

I used to be on it but my doctor and I decided to go off of it and like you we reduced amount each week til done. I don't think the pain is that much worse, I just believe as time goes on, the Fibro is getting worse therefore more pain. It sucks!!! My husband doesn't get it either and I think if I were in his shoes, I wouldn't understand how there can be so many symptoms and hurt in so many places!! I started telling my husband to go and find someone that he can actually have a life with, because again as you said, the stress from him not understanding was causing me more pain! He is now a little more understanding but still not very sympathetic and mean to boot when he wants to be! This is such s complex disease, everyone is different and yet we have so much alike! Put yourself first and whatever you feel will help your pain, go for it! Just do what works for you and screw everyone else, they don't feel your pain!!!

It's a very strong pain medicine that comes on a time release patch about the size of a nicotine patch, depending on what strength you're on.