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My friends act like I'm contagious and my children barely see me.My son said he was mad at me because I told his girl friend I have Fibromyalgia. He said I should keep quiet about it. I said she asked how was I,so I told the truth.She saw I could barely walk with pain, I had trouble eating and even had a hard time to speak when we went out to dinner.I didn't want her thinking I was a alcoholic or drug addict so I told the truth.I'm tired of pretending I'm perfect, I'm not.I've not told any of my… read more
Answer Summary
Members shared deeply about the isolating experience of having fibromyalgia dismissed or hidden by family and friends, with several describing... Read more
Next time wear your fibro Warriors Tshirt and your ribbon pins. Then he can't say you said anything. And also remind him that is can be inherited through the gene line And that males can get it too!!!!!
I never use the word fibromyalgia when speaking to anybody. I have always felt that doctors will diagnose you with it if you do not fit into any other box. I just never liked the word and chose not to use it. I just tell my family and friends, that have asked, that every inch of my body hurts 24/7. Every muscle is rigid and pulling against the opposing muscle. Every muscle is in spasms all the time. That my fascia is stuck like cement and even my skin hurts.
Good Morning my friend Yes it's very sad but not even all the doctors know So yeah how can people know or understand when there's nothing to show anyone. See most believe what they can see while we seem fine and have nothing to show I Litterly passed out because of pain and that was one of very few that made them question
What was going on . But I did join a Fibro program that explain a lot and they even had a family or spouse go
Mine didn't but he is Controlling manipulative abusive person . So he didn't go and got worse and well the rest is in my story. May God Bless and guide you to the help you need amen
Can always put a fibro tat on you too:) LOL I did!!! Purple butterfly with ribbon.
@A MyFibroTeam Member I do not believe this is inherited. It is your own CNS malfunctioning, or getting stuck. This is not genetic. Very few illnesses are genetic. Most illnesses are caused from mineral deficiencies at some point in life. This could be as far back as when you where a fetus less than a month old. If the mother was deficient in certain minerals then this can cause a problem in the future. Fibro is not included in this list. Fibro is caused by trauma, stress, illness then the central nervous system malfunctions. Getting the CNS back to what we call "normal functioning" is the hard problem and task at hand.
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