Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Charleston, SC

Crawling skin, or uncomfortable in your skin, or feels like all the nerves in your body have grown through your skin and have swelled or are tremendously inflamed.......

I am guessing this is common ?

It almost drives me insane. I can't even stand air blowing on me, or a rough blanket or sometimes any blanket
Even with no clothes at all I may just stand in the middle of the room.
Feel so irritable and can't stand to be around anybody because I just can't stand even one more source of… read more

August 30, 2016
 · 
Reactions

Answer Summary

Members connected over the distressing sensation of crawling, burning skin and nerve pain that many described as feeling unbearable, with some... Read more

Members connected over the distressing sensation of crawling, burning skin and nerve pain that many described as feeling unbearable, with some comparing it to being scalded, electrified, or trapped in a body that doesn't want them. Several members shared that medications like Tramadol, Gabapentin, Lyrica, and Cymbalta provided varying degrees of relief, while practical strategies such as soaking hands and feet in cool water, wearing knit gloves, taking Benadryl, and managing stress levels helped some find temporary comfort. A recurring theme was the profound isolation of experiencing pain that others struggle to understand, the frustration of finding doctors who take fibromyalgia seriously, and the collective relief of discovering they weren't alone or losing their minds when symptoms felt overwhelming.

A MyFibroTeam Member

I take the gabapentin for this reason!

August 30, 2016
A MyFibroTeam Member

Sa Tait, I don't know if you still come on here but, I wanted you ro kow your not alone . I did the same thing not knowing it was my fibro doing it . I hope you finally found a doctor to help you . I have one now my self but sadly I'm allergic to anything that could help so I'm trying to find other ways to get it to not flare up so much. My thoughts and prayers are with you. Hang in there we will get though this together.

August 5, 2018
A MyFibroTeam Member

I have had fibro and lupus for over 20 years. I had a sever flare up of the fibro a couple of months ago and for the first time ever developed Neuropathy, which is what everyone seems to be describing. My fibro attack was triggered by high dose steroid shot for Lupus. After 2 months of Neuropathy the symptoms eventually calmed down. Very frightening experience. I Could not take a luke warm shower without feeling scalded, numbness, creep crawler feeling, shooting pains, pins and needles all throughout my body from head to toe! I choose to just wait it out and not take gabapentin, so I can't give advice on this med. Keep hope everyone, it can go away as flare subsides. Hugs...

September 7, 2016
A MyFibroTeam Member

Yes Steele, I have the same problem and you want to scream because there is nothing that is comfortable about it at all and sometimes I just want scream. For it feels like I'm in body that doesn't want me. I hope you feel better, God Bless you always.

September 5, 2016 (edited)
A MyFibroTeam Member

I was just getting ready to ask this question too. I've had fibro for over forty years, but never suffered as

much as some others for which I was very grateful. Over a year ago I severely broke my wrist and the pain

just never seemed to get better. Within six months it travelled up my arm then into the opposite hand. Then

the burning, tingling pain started all over my body. It feels like an electrified mesh body suit. By evening I do

sometimes feel like I am going to lose my mind. I am on gabapentin and am now up to 1250 MGs and it

might be helping little bit, but still very painful. I also visibly twitch. One doctor suggested it might be

Complex Regional Pain Syndrome, but bone tests didn't indicate the usual uptake of dye at the original

break site. After reading about others having this symptom, I'm beginning to think maybe this is a huge fibro
flair.

Thanks all for being on this site and sharing information. I have a very supportive husband, but even he admits it is hard to understand what this is like unless you've experienced it.

August 31, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
St Helens, UK

A MyFibroTeam Member asked a question 💭
Snow Hill, NC