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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Norwood, MA

Since I was only diagnosed three months ago, and I try to figure out which new symptoms are related to fibro I would like to ask if anyone is experiencing throat/mouth/jaw/eye pain as well as burning on head skin. At time some of the teeth hurt as well. I went to the dentist today, he said that everything looks fine.
My mouth and eyes also get very dry.
Any input is appreciated.

August 25, 2016
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Answer Summary

Members validated the original poster's concerns about burning scalp, throat, jaw, eye pain, and dry mouth as legitimate fibromyalgia... Read more

Members validated the original poster's concerns about burning scalp, throat, jaw, eye pain, and dry mouth as legitimate fibromyalgia symptoms, with several identifying the scalp burning as allodynia, a type of neuropathic pain triggered by temperature changes or even the sensation of hair itself. Many community members shared practical strategies including using moisturizers for burning skin, eye drops for dryness, mouth sprays or hard candies for dry mouth, salt water gargles for oral discomfort, and one member urged caution that long-term dry mouth from medications can damage teeth. A recurring theme was the importance of ruling out overlapping conditions like Sjögren's syndrome through blood tests and TMJ through dental evaluation, as well as the shared frustration of navigating multiple unexplained symptoms while searching for answers and relief.

A MyFibroTeam Member

Burning scalp I've had for 10 years, it's another neuropathic pain called Allodynia and in my case is triggered by temperature change - since found out it's another type of pain that fibro sufferers can experience! Also suffer from photophobia which caused acutely pain particularly fr fluorescent lights and car lights so I'm unable to drive at night

August 25, 2016
A MyFibroTeam Member

Thanks for the responses

September 4, 2016
A MyFibroTeam Member

My teeth have been killing me.

August 26, 2016
A MyFibroTeam Member

What you are describing sounds like me and I have been diagnosed with sjorgrens syndrome, which have all the symptoms you have described. I got the diagnosis from a blood test - sjorgrens anti-ss-a. you might want to suggest this to your dr.. at least you can rule it out if i am wrong

August 26, 2016
A MyFibroTeam Member

My mouth and eyes are always very dry, I blame the medication.

August 25, 2016

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