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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Syracuse, NY

Hi.. my rheumatologist told me fibro is not consideredoing eligible for a disability. I am an elementary principal and I just cannot keep doing the job. Stress, pain, stiff, fog you name it. Did anyone else have a doctor who helped you get disability? She said I could try for depression and anxiety but that is so frustrating because we know it is a symptom not the cause.

I live in the central ny area.

July 27, 2016
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Answer Summary

Members rallied around someone whose rheumatologist dismissed fibromyalgia as ineligible for disability, with the overwhelming consensus being... Read more

Members rallied around someone whose rheumatologist dismissed fibromyalgia as ineligible for disability, with the overwhelming consensus being that fibromyalgia is absolutely recognized for disability benefits in the United States and that finding a more supportive doctor is crucial. Several members shared their own successful disability claims, emphasizing the importance of thorough documentation from all doctors, keeping detailed personal journals of daily symptoms, hiring a disability lawyer, and preparing for the reality that most cases are denied initially and require appeals that can take years. A recurring theme was persistence and self-advocacy in the face of a grueling process, with members offering emotional support and practical advice such as applying online immediately, understanding the one-year no-income requirement, and leaning on community and family for financial and moral support during the wait.

A MyFibroTeam Member

That's ridiculous get a new doctor. I was awarded disability and was even given almost 6 yrs of back pay for continuing to work even after my diagnosis. The judge looked at it as I tried to stay a providing citizen to the community. Do not get discouraged but I also would say start being your own personal advocate. What I mean by that do everything you can to get all of your doctors information in your charts. Start a notebook for everyone you talk to at the dr. offices their name, what time you talked to them, as well as what about. Also start a journal for yourself of what you experience on a daily basis. All of these things will give your lawyer a better advantage to do his/or hers job properly. Most people are turned down 2-3 times before being awarded. I feel this is done just to see how long someone will hold out or give up. You do realize that you have to be seen as not having income for a year that's what hurt a lot of people. Very few are able to do this. Fortunately I had very compassionate family and friends that had see me go through 4 neck fusions and daily excruciating pain until I could no longer take it. I hope you are as fortunate. I also will keep you in my prayers. It's a tough rode but if your pain is at the point of no relief you stick to it and go for it.

July 27, 2016
A MyFibroTeam Member

My doctor did the whole thing and it is absolutely eligible for disability. At least here in the USA.2

July 27, 2016
A MyFibroTeam Member

I hit mine on Fibromyalgia/chronic fatigue! I was 54 at the time and was a lab tech for an orthodontist! Couldn't stay up was so fatigued and couldn't use my hands and arms I hurt so bad! I was denied first go around, but appealed and got a disability lawyer! Was approved and a lot of back pay from the time I applied! So go ahead and file and make sure every doctor you see knows how bad you feel and make sure it's well documented! You can't be working while you wait! Best wishes! I am now 68!

July 28, 2016
A MyFibroTeam Member

I got disability just last week went from DLA to PIP enhanced rates. Happy to help if I can

July 31, 2016
A MyFibroTeam Member

I filed my own disability online. Was rejected the first time and then appealed my case. It went 21/2 years before I got accepted. My first payment will be this month. The only reason I was approved was I wrote to my state senator and he took care of everything

July 29, 2016

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