Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
San Antonio, TX

I currently use forearm crutches occasionally and in the process of obtaining a wheelchair. Walking around the mall and some stores has become a hassle. I feel embarrassed and feel that it isn't necessary that I use these equipment but I know I do need it. I guess its just the anxiety. Does anyone else use any form of equipment to get around and how often?

July 11, 2016
 · 
Reactions
A MyFibroTeam Member

I too use mobility aids. I have Fischer handle stick and crutches. I also have a wheelchair for severe days/long journeys. I also have a bath board to help me with showering as this is so difficult now. Stairs are becoming more of a challenge and I am aware I need to address this.

Using these aids have made me feel helpless at times and I am very stubborn about using these. I look back to when I was independent and feel sad. I continue to try and push myself to remain as mobile as possible but this illness is definitely progressive.

Look after yourself x

July 12, 2016
A MyFibroTeam Member

Yes I also use crutches to get about outside as I feel more supported,plus the pain slows me right down to the pointI feel I can no longer take another step so I also have my wheelchair for really bad days. It's understandable to feel the way you do,before I had Fibro I was a a very active person so to going from this to crutches/wheelchair was a massive blow to me, yes I was embarrassed to be seen with mobility aids etc but once I learned to accept that this was now a part of my life & the more I got used to them the acceptance became easier,

July 11, 2016
A MyFibroTeam Member

The transition is different for everyone some accept it straight away while other feel embarrassed or feel they don't need the mobility aids as they see it as being a failure,this is very common
At 1St I refused to ask for help as I was used to being so independent, it finally hit home when I realised that even doing the easiest of tasks like housework got to much for me & not being able to climb my own stairs to bed,i took to my crutches straight away but must admit was embarrassed when at 45 3 yrs ago I got my starlit I would not use it for ages in front of anyone including my family but as time went on & with their help & understanding I finally started using my starlift, the shame & embarrassment have gone now & my husband is my registered full time carer
It takes time & patience but you will get there

July 12, 2016
A MyFibroTeam Member

Hi Deborah, I got my mobility aids through my social work where they send someone out to assess your needs

July 12, 2016
A MyFibroTeam Member

did the Dr prescribe these for you and I'm so scared of getting to that point,I have mobility issues now,gentle hugs sent your way

July 12, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Vancouver, BC

A MyFibroTeam Member asked a question 💭
Simi Valley, CA

A MyFibroTeam Member asked a question 💭
Regina, SK