It's hard for people to understand that you're in pain every day. Most people can't imagine such a thing more than briefly. Sympathy or empathy only goes so far before people get wrapped up in their own lives. Instead of asking for understanding for something that really can only be understood by fellow sufferers, how bout just asking for support? Say what you need in specific ways, so it's more achievable for your family and more helpful for you. Also show them the spoon theory article.

i have changed Doctors because the ones I had have no clue how to treat it. Look around ask people in your area. Call the Doctors office and ask if they care for Fibro.

My Dr wants to test me for small fiber neuropathy too. I have nerve damage in my foot, hip and can't stand IV's because they hurt too much. I don't know much about small fiber neuropathy, but I do know I have most symptoms of fibro. I find doctors don't know very much of these diseases. I've had Drs say there's nothing wrong with me. Others say it's just depression, fibro doesn't exist. Many have said they can't help me and flat out refuse to try any treatment during a flare-up. When I ask what I'm supposed to do, their stock answer is go somewhere else, and if it gets bad, go to the ER. I'm amazed how many times I've been told to go to the ER instead of getting treatment as simple as a corticosteroid. Drs avoid what they don't understand, so research and education about our diseases isn't well known.

I was diagnosed with perahial neuropathy but I wonder if thats right..bc I sweat so bad I dehydrate all the time now..

I'm so sorry you've had that experience with Dr's. My team has been really great about trying many different meds and treatments. I was actually just referred for the cortisone shots in my neck to help with inflamation and migraines/headaches. I have only a couple more options for meds and if my body keeps rejecting them, I will then have the option of IV treatments. There frustration is with the little understanding. I can't help my family to understand this and what it is like to go through this if I don't understand it myself.