Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Orange, CA

I know we all suffer with insomnia on some level... But I have developed server PTSD and anxiety around sleep. I have difficulty falling asleep and staying asleep every single night. I am up til 12am-4am every night and have to still wake up at 7am every day. I have tried ever sleep, anxiety, depression, pain, and muscle relaxant pill out there. I have tried all the vitamins and supplements recommended for sleep and my last resort I tried recently was medical marijuana. The medical marijuana… read more

July 9, 2016
 · 
Reactions

Answer Summary

Members shared deeply relatable experiences with severe fibromyalgia-related insomnia, describing patterns of sleeping only minutes at a time,... Read more

Members shared deeply relatable experiences with severe fibromyalgia-related insomnia, describing patterns of sleeping only minutes at a time, trying countless medications and supplements without lasting relief, and the profound frustration of exhaustion that paradoxically prevents sleep. Several members offered practical strategies that have helped them, including bedtime routines with valerian tea or hydroxyzine, cold showers before bed to trigger a cozy response, eye masks to improve sleep quality, and combining pain relievers with muscle relaxers. A recurring theme was the importance of working with mental health specialists for PTSD and anxiety management, being patient with trial and error since what works varies greatly between individuals, and offering compassionate understanding to those balancing severe insomnia with the demands of caring for children or managing multiple chronic conditions.

A MyFibroTeam Member

You are obviously a kind and loving person with a truly good heart, an aunty in a million. The stress that you have put yourself under by taking on the children will no doubt have added to your fibro flares and insomnia, but its a trade of isnt it. You obviously did not want to see these children go into care so you did the right thing for them. But at a huge cost to yourself/health. However i am sure that in time you will learn how to balance both your health and tge children. I wish you all the luck in the world. And hope you find a happy medium for you all. You are an amazing person.

July 12, 2016
A MyFibroTeam Member

@A MyFibroTeam Member 😔 Thank you! You're right... Raising kids and fibro are both equally difficult and challenging, having to do both is dam near impossible most days! I also have the added stress of them not being my kids and having to deal with all the issues that come along with children of abandonment :( the last 2 years have been the toughest of my life and I am only 30 and don't have kids of my own. I am too young for this stuff!!! Thank you so much to all of you who commented I really appreciate all the help.

July 12, 2016
A MyFibroTeam Member

Sorry to hear that and yes I'm
On ambien CR 12.5 and I take 1mg of Xanax if I get anxiety. It helps
With sleep.

July 11, 2016
A MyFibroTeam Member

@A MyFibroTeam Member
I have tried melatonin many times, different doses, etc. for me, it doesn't help, it just makes me have weird/bad dreams, and wake up super groggy and in a bad mood... Almost like a crappy "hangover" feeling. I know it does work for some people though. But unfortunately it doesn't for me. :( but you have to be careful with melatonin because you can take too much and cause imbalances in your body. Most people just decide to get it on their own since it is OTC, but never know what dosage to take. If you try it I hope it works for you.

July 11, 2016
A MyFibroTeam Member

I agree when living in a busy family home its very difficult to have that type of sleep routine. Sounds great in theory, total washout in practicsl terms. Try to take a few minutes everyday for yoursrlf if you can. Maybe when the children are at school or when they do sleep. My heart aches for you. Raising children is hard enough, let alone desling with the curse of fibro.

July 11, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
South Africa Cape Town

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In