My 19 year old son shows no compassion, we are not that close as we clash a lot but since fibro he's been worse! I feel really hurt when he makes fun when I get confused and mix up my words😞 I'm still new to all this myself and finding it hard to cope sometimes! I break down in tears at the drop of a hat which is not me at all, I find myself shutting myself off from family when I'm struggling! Xx

I have three children, a daughter 8, another daughter 18 and a son 20. My girls both have empathy for me and help where they can but my son, although we are very close, can't seem to understand when I say I'm not well. He doesn't actually think there's anything wrong with me. It's so hard for me because I haven't actually had a diagnosis as yet but have all the symptoms of fibromyalgia and have had for a few years now and am currently waiting to see a rheumatologist. So I understand how you feel and maybe if I get that diagnosis, then maybe my son will understand a little more. Good luck xx

I would rather work my tail off as a nurse than hurt and sit home, any day. I sometimes feel like my family doesn't empathize....so trying to educate them more.

Both my children, 38 and 40, think I'm lying for sympathy.

Hi I understand I have two lads one is unbelievable he has been there every step of the way and is my main care person takes me doctors and other appointments and will do anything I ask the other one as far has he thinks I'm putting it on and its all in my head had to give my job up 10 years ago as a nurse that I loved and he thinks I like been on benefits I'll tell you id sooner be working with no pain I loved my job so your not on your own good luck x