Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Pinehurst, TX

I'm looking for ways to fill your day. I'm not looking for watch movies, read, walk the dog, I'm looking for something a little more adventurous. Right now I drive relatives and myself to doctor appointments, take care of nephews, and volunteer. I am looking for ways to fill ones day. Volunteer programs. Family caregiving ideas for elderly and youth. Something totally different. Give me and others ideas to keep us busy and out of the bed. I'm not looking for skydiving or bungy jumping… read more

June 5, 2016
 · 
Reactions

Answer Summary

Members responded enthusiastically to a question about meaningful volunteer activities with a wealth of practical ideas that balance community... Read more

Members responded enthusiastically to a question about meaningful volunteer activities with a wealth of practical ideas that balance community service with physical limitations. Several members suggested working with children through reading programs at schools or libraries, summer camps, Bible school, organizing walking school buses, creating summer activity packs for kids in need, and helping elderly neighbors with errands or grocery shopping, while others recommended animal shelter volunteering like cat cuddling, food banks, Meals on Wheels, genealogy libraries, and even creative pursuits like painting classes or quilting for veterans. A recurring theme was the importance of staying busy to manage depression and pain while remembering to care for yourself too, with members sharing honest reflections about doing what they can despite daily pain and the mental health benefits of helping others.

A MyFibroTeam Member

@A MyFibroTeam Member I know it sounds like a lot but the things I do only last 1-3 hours and only one thing a day. I do talk to people about the deseases I have and how difficult they are to live with. What makes it hard is people see the commercials for medication like lyrica that shows you take a pill and you're cured, which we all know is not true, and they tell you to ask your doctor for the new medicine. The problem is I'm on Lyrica and I still hurt everyday all day long. I can't walk more than down stairs to get my mail and my legs are swollen and hurt so bad I can barely walk. When I go to the store I have a list and get what's on the list and get back home to put my legs up. We all do what we can each day and we all seem to push a little bit to far on a daily basis. I hope everyone is having a good day and staying as pain free as possible. Prayers out for everyone.

June 6, 2016
A MyFibroTeam Member

Schools often need help,they appreciate having someone just to sit with individual children and hear them read,and this is great for the kids,the teacher doesn't get time to do this.walking school bus often needs volunteers,where adults collect groups of children from the local area and they all walk together to school ,is good for children's fitness and less cars on the road,so great for environment too,frees up parents for work too.Animal shelters have things like cat cuddling ,where people go in and just spend time stroking the cats ect,this is vital for the more feral or lonely animals living in animal shelters until a home is found for them.They also need people to do home checks before an animal is handed over to the new owner.There are gardening projects too. Cooking in soup kitchens for the homeless. I once did something called toad patrol,basically every year lots of toads cross busy roads in order to get to their mating pond ,many do not make it as they are run over.toads are on the decline so groups were set up to spot toads crossing the road and collect them up and put them on the other side of the road .It's not ideal though as toads like the wet weather and also come out in the dark so long evenings in the wet not so good for fibromyalgia. But it was an experience.

June 6, 2016
A MyFibroTeam Member

Collect books from neighbors to donate to the school library or to keep and help with homework, most schools have a book limit set for the school year,make summer packs like you do the lunch packs, summer packs should have quarters for the park pool, a water bottle, goggles, nose plug, ear plugs, energy bar, just an idea most kids stay outside all day and forget to eat or they may be latch key. Just ask yourself what would you need for a summer outing, and I'm sure you'll come up with something

June 6, 2016
A MyFibroTeam Member

Your so lucky you have the chance to do, things..I wish I could,, how do you feel when on the go? I never no what, iam going to feel like frm one day to nxt..&wth the depression/anxiety its is also very hard...But if I could i would be back out there running my buisness&working..why dont you in some way raise awareness of this awful illness,, in some way, be a advocate, etc..that would be good.:-)

June 6, 2016
A MyFibroTeam Member

I always go up and the paper for a friend who runs a corner shop make sure she is ok for everything also have a chat and a laugh also play on my computer or read a book like crime mystery

June 6, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Ellesmere Port, UK

A MyFibroTeam Member asked a question 💭
Cross Plains, TN

A MyFibroTeam Member asked a question 💭
Lebanon, KY

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In