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A MyFibroTeam Member asked a question 💭
Henderson, NV

When you have a flare up what kind of symptoms are you having?

My worst flare ups are so bad that I can't get up off the couch because the pain is to severe. I get a migraine, my teeth hurt, my joints kill me and my whole body hurts bad enough that it makes me throw up.

May 16, 2016
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Answer Summary

Members described fibromyalgia flare-ups as debilitating episodes of severe,全身 pain that often leave them unable to move, care for themselves,... Read more

Members described fibromyalgia flare-ups as debilitating episodes of severe,全身 pain that often leave them unable to move, care for themselves, or complete basic tasks, with many noting that even their regular medications provide minimal relief during these episodes. Several members shared practical coping strategies, including hot baths with Dead Sea salt, TENS units, Salonpas patches, high-dose vitamin D, and using narcotic pain medications when necessary to take the edge off. A recurring theme was the emotional toll of needing help from children or spouses during flares, the unpredictability and increasing frequency of episodes, and the shared frustration of living with a condition that causes such profound suffering.

A MyFibroTeam Member

When I am having a bad flare I can't function. I have severe pain everywhere. Muscle spasms and twitches. Depression and other emotional moods. I can't tolerate sound or light. My body is sore and hurts to touch. When I walk it is very slow. Turtle could out walk me. All my other health conditions are worse. Here within the last year the flares are more offen and a lot worse. And you can forget sleep. Which I don't sleep anyway. Insomniac. I have one question "Why does this monster exist"? Hugs to everyone 💞

May 17, 2016
A MyFibroTeam Member

Best way I can describe it Wearing sandbags on my muscles pulling them away from my bones leaving the joints just hanging

May 17, 2016
A MyFibroTeam Member

It's the same thing with me @A MyFibroTeam Member. My two children have to take care of me as well and nothing helps my pain during a flare up besides narcotic meds. And even then its minimal. If I can make it to the bathroom I'll take a nice hot bath and just soak for awhile.

May 16, 2016
A MyFibroTeam Member

I have to have my 7 year old son help take care of me when I get a severe flare up. Which I hate because I'm supposed to take care of him. I can't drive or even walk because the pain is so bad.
Normally my medications that I take daily(gabapentin, effexor, and cyclobenzaprine) but if I have a flare up none of it works except for narcotic pain meds. Anyone else have the same experience with their medications during a flare?

May 16, 2016
A MyFibroTeam Member

I think it varies for many, but basically it starts with all over body pain. I get bad body pain, TMJ acts up, usually I get the start of a migraine but not always. Sometimes I get nauseated, but mostly, I cannot move, even with pain meds. The pain meds (percosed) that I take will take the edge off, but I only take enough to take the edge off. I am blessed that I can lay down and rest as long as there is some relief of pain. Sometimes I have to get to a resting position fast or I get to a point where I can't move alone and need my husband or kids to help me (don't like to do that). I also have a clotting disorder, and a lot of drug allergies so I can't take many meds including any NSAIDS (naprocin, ibuprofin, etc.) and tylenol barely touches the pain - more like an annoying tickle. If I get the attack in the beginning and it is not a bad attack, the pain meds can put me back in working condition. I need to stay out of the sun and take a lot of Vitamin D daily (5000iu).

I also use the small Salonpas patches for localized back/sciatic pain and aches. These are not the ones with capsacian.

Hope this helps you id what is happening with you.

May 16, 2016

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