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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Maysville, OK

Hi fibro family, I was just wondering does anyone know how many people r on this site? Just curious. I was thinking the as so many or maybe even all of us at one time or another, how did the medical community allow this disease get so out of hand? With all the people who r suffering with fibro didn't just get it, we know it has been around a very long time. Do u think, I know I did in the past, make excuses for my problems, i.e. I must just be a nervous person is why I have ibs-d, or don't… read more

May 14, 2016
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Answer Summary

Members warmly welcomed a question about how many people are on the site, with several confirming the count is over 81,000 and celebrating the... Read more

Members warmly welcomed a question about how many people are on the site, with several confirming the count is over 81,000 and celebrating the supportive, judgment-free community they've found. The conversation shifted to discussing theories about fibromyalgia's origins, with members sharing personal experiences with Epstein-Barr virus and debating whether it might trigger or be linked to fibromyalgia, along with the possibility of hereditary factors. A recurring theme was gratitude for finally finding understanding and validation after years of being dismissed by others who didn't comprehend the reality of living with fibromyalgia.

A MyFibroTeam Member

On the "Meet Other" tab looks like the count is 81134 and counting. I'm sure there are so many more. I'm definitely going to tell others I know are suffering. It has been so helpful to me.

May 14, 2016
A MyFibroTeam Member

I don't really know how many people are on this site. It seems there are alot. This is the best Fibro site I have been to. I look forward when I can spend more time listening to others and hopefully help some.

May 14, 2016
A MyFibroTeam Member

They say that they think it's originated from the Epstein Barr virus. They also say that it's hereditary and the gene is passed down. Some people have others in their family that also have it. My cousin has it, though not as severe as I do.

May 15, 2016
A MyFibroTeam Member

If you go to Meet Others it says there are over 81,000 people on this site.

May 14, 2016
A MyFibroTeam Member

I don't know the number, but many, many, many people are on this site everyday. And as for how the doctors let this go, they really didn't. I had it at a very young age, they just called it something else. I went to a pain clinic in 1979, and he knew what it was! I cannot think of what they called it, but if someone knows, please let me know!!! HUGS!

May 14, 2016

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