Well... you gotta try to think on their level a bit. No one can properly understand without being in our shoes. If you were able to educate them a little more about the actual illness, u know, highlighted books, internet articles... they may take you a bit more seriously and understand that what you're dealing with is a serious chronic illness that can rob people of their lives, their functionality...
Like me.

Teens have a harder time understanding serious consequences and appreciating the things that parents sacrifice for them.. it's just that kind of time. They are exploring life, their independence, they usually want to separate a little more from you and that's ok.. getting angry at them for not getting it will be useless and counterintuitive...

There are different ways to get through to them and it depends on what style they communicate best in, and your relationship with them. They gotta know how hard you worked to raise them, how much u love amd care about them, that you would do anything for them, and explain how hard life is for you know. Be specific. Be serious with them and express how important it is for them to try to understand and to maybe make deals with them to help you with certain things.

But most importantly, they gotta get WHY you aren't the same as before. Cuz all humans have difficulty empathizing with what they can't really see. People always assume I'm doing great the few times I'm out in public cuz I appear presentable during those times. If they see good, they assume life IS good. Which is why people worry about their appearance way too much. They DO get treated differently for it.

So just my thought... if you can, be patient but firm, don't give up and avoid aggression. They will run far from that. Educate them little by little... tell them how bad you are feeling, and how helpful it would be and how happy it would make u if they helped you out sometimes.

If you want to get on a road towards feeling better, support from family is a great start. I never really had any, as none of us are close, but if they just cannot understand and really don't ever respond, know that support CAN come from friends and others too... although I didn't have that either.

So if you don't get outside support and help, you will have to make changes within your life so you can rest more. Stress is the worst possible enemy. Even trying to over-do it will be your downfall.

Well.. sorry if I wasn't helpful but I tried! Hope some of that can resonate with you.
Good luck darlin!

Hi.
My daughter is Aspergers so everything is black and white. No grey. She is 15 as of yesterday but not a regular teen. So it is different. She is also very mature. But still slips up. I gave her the name and she googled to find out about the facts.
I help and do as much as I can. But won't do and can't do everything. So we have rules that don't change no matter what.
The kitchen is closed at 8 pm. Unless you cook yourself.
The dishwasher is not advanced enough to unpack itself. ( I leave a sticky note on things )
If I clean her room she has to clean mine.
Anything on the floor is eaten by the new puppy ( or vanishes).
When she has nothing to wear she realizes she has to do washing.
I teach by sticking to rules in black and white.
Rewards are spending time together. She chooses the movie.
Or I tell her stories of when I was young. Or good stories about her dad.
Or we have discussions on her choice of topic.
But she pulls her own weight. Cooks 3 nights a week.
If she can't help I won't get done.
Mom the dogs are acting strange. Oh perhaps they are hungry. It happens when you don't feed them. .....
She is stubborn but can't stand it if I am upset.
You did well with your daughters friends. Get support where you can.
Thinking of you.

yes, what helped for me was to have my son take me to my dr appt with me and actually be in the exam room with me, the dr's answered his questions and asked him questions, bellieve me when you are having injection point shots and they are standing there holding your hand while tears are running down your face they learn fast . and yes i do suggest this for the woman with the son and daughter too .
Good luck

@A MyFibroTeam Member, You will just need to say, "NO!" End of conversation! How selfish of them! Dumping off their children for *their conveniences!! Your grandchildren seem to "get it." Don't feel guilty. (?) What would they do if you were NOT "in the picture?" Find someone else and pay more for babysitting services.
"SEVEN" kids? I have nothing against children. But they need to do one of two things:
1. STOP having sex
2. Get their tubes tied

Aside from my opinions on your serious problem, please see if a rheumatologist, LPN etc. will give you a prescription for *500Mg. Nabumetone. This has reduced my Fibro pain up to 60% (just guessing). Only thing is it MUST be taken with food. So if I've had lunch and forgotten to take a pill, I will need to eat again to take this pill.
Please keep in touch and let me know of any success. God Bless, My Friend. I pray that you have a Pain FREE Thursday.

Mentioned Users

A MyFibro...

@A MyFibroTeam Member I found a way, finally, today to get my daughter to finish her chore. She thought she'd out smarted me by hiding her phone when her time limit was up to get it done. But I had 3 of her friends phone numbers and their respect, so I texted them not to contact her in any way as she was on restrictions. I also asked one of them to pass it on to her friends I didn't have actually to. Worked. Until she decides to go with "I still have Netflix " about 30 minutes later, her brother turned off the Internet. It was amazing how fast she was ready to get her chore done. She wanted me to text her friends when she came out to say she was going to do it and I said I would text when I saw it being done. Now we know what works. My 15 yr old son is easy to get to do extra, as he's trying to earn money for stuff we won't just buy him.

Mentioned Users

A MyFibro...