I do, but struggle sometimes, I find it does keep me motivated, if I didn't work, I think I wouldn't manage my symptoms as well. Still find it difficult to give in to symptoms when having a flare or bad day, and difficult for others to understand when I 'look' ok. Good luck

Thanks @Craftymum, yes I'm in the mind set to keep doing as long as I possibly can - if I can just get on top of the pain with my meds it would make life easier! Good luck to you all - keep fighting😊

I'm newly diagnosed too and I work part time in retail 11 hours a week - I do one shift and then pay for it the following day then I'm back in again and the same thing happens! I was in work yesterday and was struggling walking I was in so much pain so I'm not sure how much longer I'll cope with it to be honest. It's not just the money it's the social side, I love to be around people and when I'm not I get very low😞

Nope. I've finally had to come to terms with this fact. Even part-time doesn't work out because I can't control when flares & fatigue will occur. It sucks but I do contract work--event planning, grant writing & general fundraising. I also donate plasma for $100/week.
I'm applying for SSDI tomorrow, actually. It's about a 12mo process (& that's without getting denied & appealing--which we should always do). I'm blessed that my wife is the "breadwinner" & loves doing it.
I'm so sorry this is happening to you. I totally understand though.

I work - I just do what I have to do but trust me - it isn't easy . As far as disability goes ... I can't afford to not work to see if I get it or not ..
I hope you find something :)