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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Grafton, IL

I know one of our most common symptoms is itching. For me it's usually on my back and scalp. Feels like a million little bugs crawling on me. Anyway, my itchiness gets worse when I get overheated. I can't even wear a jacket in 50° weather, because I may get the slightest bit warm then get all itchy. Anyone else have this issue?

April 4, 2016
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Answer Summary

Members connected over the maddening experience of fibromyalgia-related itching that worsens with heat and sweating, describing sensations... Read more

Members connected over the maddening experience of fibromyalgia-related itching that worsens with heat and sweating, describing sensations ranging from crawling bugs to pin-prick tingles that seem tied to overactive nerves. Several members shared practical relief strategies, including antihistamines like Loratadine or Benadryl, gentle moisturizers such as Aveeno almond oil, Doublebase gel, or E45 cream, back brushes for hard-to-reach spots, wearing loose layers instead of heavy jackets, and avoiding scented products that can irritate sensitive skin. A recurring theme was uncertainty about whether the itching stems from fibromyalgia itself, medication side effects, or both, with many members finding that symptoms intensify during flares and improve as pain and anxiety are managed.

A MyFibroTeam Member

OMG, I never knew that itching was a symptom but now that I have reed this I do itch my back, arms, legs and I use body butter cream. I have excame so I buy the good stuff. Thanks I'm going to check this out more good luck to you.

July 3, 2016
A MyFibroTeam Member

I itch all the time and have terrible sweats. It gets worse when I sweat, and when I flare. Some meds can make you itch, but I feel it is a part of the fibro. Also, I was told that the itching is a form of neuralgia, in which, it seems a lot of us with fibro have these symptoms. Makes sense. Those little nerves never stop moving around, I don't think...

April 4, 2016 (edited)
A MyFibroTeam Member

Yeah I bought a back brush with medium bristles so I can reach the irritating parts on my back when it drives me crazy. I ignore it as much as possible but some times that one spot just gets too much and needs a good itch. I always wear loose cool clothing and use layers instead of jumpers etc in winter.
I've sensitive skin anyways, always have had, aveeno almond oil lotion helps to cool my skin after a shower or bath.
My patches were making me burn up and sweat and itch too much though so I reduced the dose significantly. As long as it is not a major everyday issue due to meds then it is OK, annoying but nothing to worry about. xx

April 5, 2016
A MyFibroTeam Member

People (doctors) have told me the sweating and itching are sides to meds but I'm not convinced as they were there before and I'm always worse with itching/sweating if I have a flare up. The sweating also makes my itching worse - I think it just loosens my skin to the point where it just falls away if I scratch, which in turn means I itch more. It's horrible.

April 4, 2016 (edited)
A MyFibroTeam Member

E45 cream and bathroom products

July 11, 2016

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