Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Worcester, MA

I got diagnosed with peripheral neuropathy yesterday, and I'm trying to wrap my head around it.I've heard some horror stories about peripheral neuropathy. They took like 8 vials of blood and a urine specimen. The doctor is testing for the treatable forms, praying that it is what it is. They have a have a more invasive test which I am going to do Iif necessary

March 31, 2016
 · 
Reactions

Answer Summary

Members shared their experiences with peripheral neuropathy after someone received a new diagnosis, with many describing symptoms including... Read more

Members shared their experiences with peripheral neuropathy after someone received a new diagnosis, with many describing symptoms including burning sensations, pins and needles, numbness in hands and feet, and difficulty walking. Several members offered practical management strategies including medications like gabapentin, pregabalin, duloxetine, and Cymbalta, lifestyle modifications such as crocheting or marble exercises to retrain nerve signals, TENS units for pain relief, and magnesium supplementation for symptom control. A recurring theme was that peripheral neuropathy can stem from multiple causes beyond diabetes including fibromyalgia, spinal injuries, and vitamin deficiencies, with members emphasizing the importance of waiting for complete test results before worrying and maintaining hope that treatment options exist even when the condition feels overwhelming.

A MyFibroTeam Member

I have that feeling in my right leg! They did the invasive needle and electrodes test and said I don't have damage but I get the burning and needle feeling all the time! When fibro rears it's ugly head, it's on! I'm on Gabapentin for it. Helps when I don't take it regularly. Body gets used to the doses. I take it as needed. Which is damn near everyday. God bless us all dealing with this disease. Most cannot comprehend the pain we endure

April 6, 2016
A MyFibroTeam Member

Hi lovely I'm not sure . The consultants should be able to answer all your questions when you go back . Try not to read and listen to othets everyone is different and there are so many terms and effects for all .

A close relative has PN they often get burning sensations on feet and inability to walk at times but everyone differs and there are different forms . Await the results is best
Love and light

April 1, 2016
A MyFibroTeam Member

I finally got to see a neurologist last week. He told me to increase either my gabapentin or amitriptyline. Then he sent me for a blood test for vit B12 & Vit D, + a whole load of other stuff so will see what happens when I get the results of that

May 8, 2016
A MyFibroTeam Member

I have peripheral neuropathy and get pins and needles in arms, hands, fingers, legs, feet and toes. I can't feel temperatures very well and get pins and needles. Mine is caused by cfs and hasn't caused any scare tissue so isn't permanent at the moment. I also have bladder issues and sometimes leak a small amount as nerves don't work properly. I crochet which helps send correct signals to brain and helps stop the pins and needles. With the feet you can roll and pick up marbles and put them in a bowl. Hope it helps.

March 31, 2016
A MyFibroTeam Member

After reading everyone's post to peripheral neuropathy...everyone is right. The word peripheral just means all over or if in the view of the consequences...you will always have it as you age. It usually starts in the feet and like FM moves up the legs. Neuropathy means that never endings are dying and when they die you feel like needles poking you or worse like a scapula running through the muscle fibers. You have the ability to slow the rate down of innocence by cutting sugar out (and the Aspartame). Also exercise, blood is pumping forcing almost dead nerve endings. http://www.herbs-info.com/blog/warning-aspartam... That includes all of the sweeteners except Splendid.

April 1, 2016 (edited)

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Kansas City, MO

A MyFibroTeam Member asked a question 💭
Murray Bridge, AU

A MyFibroTeam Member asked a question 💭
Brigham City, UT