What Does Anyone Know About Peripheral Neuropathy | MyFibroTeam

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What Does Anyone Know About Peripheral Neuropathy
A MyFibroTeam Member asked a question 💭

I got diagnosed with peripheral neuropathy yesterday, and I'm trying to wrap my head around it.I've heard some horror stories about peripheral neuropathy. They took like 8 vials of blood and a urine specimen. The doctor is testing for the treatable forms, praying that it is what it is. They have a have a more invasive test which I am going to do Iif necessary

posted March 31, 2016
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A MyFibroTeam Member

I have that feeling in my right leg! They did the invasive needle and electrodes test and said I don't have damage but I get the burning and needle feeling all the time! When fibro rears it's ugly head, it's on! I'm on Gabapentin for it. Helps when I don't take it regularly. Body gets used to the doses. I take it as needed. Which is damn near everyday. God bless us all dealing with this disease. Most cannot comprehend the pain we endure

posted April 6, 2016
A MyFibroTeam Member

Hi lovely I'm not sure . The consultants should be able to answer all your questions when you go back . Try not to read and listen to othets everyone is different and there are so many terms and effects for all .

A close relative has PN they often get burning sensations on feet and inability to walk at times but everyone differs and there are different forms . Await the results is best
Love and light

posted April 1, 2016
A MyFibroTeam Member

I finally got to see a neurologist last week. He told me to increase either my gabapentin or amitriptyline. Then he sent me for a blood test for vit B12 & Vit D, + a whole load of other stuff so will see what happens when I get the results of that

posted May 8, 2016
A MyFibroTeam Member

I have peripheral neuropathy and get pins and needles in arms, hands, fingers, legs, feet and toes. I can't feel temperatures very well and get pins and needles. Mine is caused by cfs and hasn't caused any scare tissue so isn't permanent at the moment. I also have bladder issues and sometimes leak a small amount as nerves don't work properly. I crochet which helps send correct signals to brain and helps stop the pins and needles. With the feet you can roll and pick up marbles and put them in a bowl. Hope it helps.

posted March 31, 2016
A MyFibroTeam Member

After reading everyone's post to peripheral neuropathy...everyone is right. The word peripheral just means all over or if in the view of the consequences...you will always have it as you age. It usually starts in the feet and like FM moves up the legs. Neuropathy means that never endings are dying and when they die you feel like needles poking you or worse like a scapula running through the muscle fibers. You have the ability to slow the rate down of innocence by cutting sugar out (and the Aspartame). Also exercise, blood is pumping forcing almost dead nerve endings. http://www.herbs-info.com/blog/warning-aspartam... That includes all of the sweeteners except Splendid.

posted April 1, 2016 (edited)

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