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A MyFibroTeam Member asked a question 💭
Southampton, UK

So Been thinking of maybe being referred to that doctor beginning with r ( can't think of name) but just wondering is it essential to b with one. When my drs perscribes me the medication for fibromyalgia. Also what do they do what the gp dont

March 24, 2016
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Answer Summary

Members discussed whether seeing a rheumatologist is essential for fibromyalgia, with most agreeing that while rheumatologists can help rule... Read more

Members discussed whether seeing a rheumatologist is essential for fibromyalgia, with most agreeing that while rheumatologists can help rule out other autoimmune conditions like lupus or rheumatoid arthritis, they often provide limited ongoing support once fibromyalgia is diagnosed. Several members shared that their primary care doctors or pain management specialists became their main source of treatment, emphasizing the importance of finding a doctor who truly understands fibromyalgia, whether through personal experience or genuine empathy. A recurring theme was that managing fibromyalgia requires a personalized, multi-faceted approach, including alternative therapies like physiotherapy, massage, orthotics, and addressing mental health, with members encouraging each other to advocate for themselves and explore what works best for their individual needs.

A MyFibroTeam Member

Hi @A MyFibroTeam Member - I don't think it is essential to be referred to a rheumatologist. I was pseudo-diagnosed by my family doctor, then he referred me on to a rheumatologist, basically to rule out any other autoimmune disorders (such as lupus) before she actually diagnosed me with fibro. So, I guess that is a good thing in itself if you (or your primary doctor) feel you may have any other underlying concerns such as those....My rheumatologist basically did all the blood work and x-rays, which all came back negative for autoimmune disorders and said that I most probably was dealing with FM..and said that I have been probably for many years according to what I shared with her. The only thing with my rheumy is that she really didn't have much advice for me other than to exercise and taking Cymbalta (which I had previous researched and was already on). That's it! So, have been seeking help on my own through other professionals. I see a psychiatrist for anxiety and depression that is huge for me (sometimes leaving me in bed for days), as well as seeing a podiatrist for orthotics which have made a world of difference to my feet!, as well as massage and intramuscular stimulation through a physiotherapist. In my opinion a 'good' rheumatologist should give you advice, but I believe that we just have to find what is right for ourselves through different approaches, and alternative medicine for me has been the biggest help. Wishing you all the Best, Chelsea xxx Love Colleen. :)

March 24, 2016
A MyFibroTeam Member

I was also diagnosed with Fibromyalgia by Rheumatologist. My GP said nearly four years ago that he thought I might have it but did not follow through with it. He was also saying it could be my arthritis and chronic back condition so sometimes chronic pain sufferrers get labelled and ignored. I knew something was wrong as my pain changed for the worse but at last I got referred to the right doctor, better late than never. X

March 27, 2016
A MyFibroTeam Member

Hi @A MyFibroTeam Member - That so great that your GP can empathize and understand your FM symptoms, since his mother also has it. He sounds like he will be a great doctor for you!! I wish all docs could come from an understanding place like it sounds like your does. How lucky for you!! :) Wishing you all the Best!! xx Colleen

March 26, 2016
A MyFibroTeam Member

Rheumatologist for arthritis. It's mostly soft tissue problems and I refuse to take any of the drugs my doctor wants to prescribe, so many bad side effects. If you listen to others in the group most of these drugs don't work and en you have to be weened off of them. I also have IC and I have a pain patch that I put on once a week but it works for IC it does nothing for fibromyalgia.

March 24, 2016
A MyFibroTeam Member

Ithe took me a long time to find a good general practitioner PCP (primary care physician ). I do have a rheumatologist and have tried around 6 different ones I haven't found any that I like. I like my pain management doctor. He does not believe in surgery which is great. He can give me oral medication or steroid shots when needed. It's hard to get a fibromyalgia diagnosis without ruling out other problems like arthritis. I saw a website on Facebook that I want to post that may be helpful. My back has been hurting so badly. I had to get steroid shots in the SICK joints then come back for L 3,4,5 area shots. We had to talk about a backup plan for when shots aren't enough. He gave me a small prescription for Vicodin. It's been years since I needed this.
Wishing you a pain-free day!

March 29, 2016

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