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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Newcastle upon Tyne, UK

Does anyone else have vitamin D deficiency? I've just been tested and have to go on a high course of vitamin D then a lower course for the rest of my life, I'm now wondering whether this is part of fibro or whether I have fibro at all as la k of vitamin D causes a lot of the same symptoms

March 1, 2016
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Answer Summary

Members overwhelmingly shared experiences with vitamin D deficiency alongside their fibromyalgia diagnosis, with most taking high-dose... Read more

Members overwhelmingly shared experiences with vitamin D deficiency alongside their fibromyalgia diagnosis, with most taking high-dose supplements initially (often 50,000 IU) before transitioning to daily maintenance doses for life. Many community members described mixed results, with some reporting modest improvements in fatigue and mood while others saw no change in fibro symptoms, though several noted their doctors recommended supplementation to potentially slow disease progression and reduce flares. A recurring theme was the hope that vitamin D deficiency might explain fibro symptoms or represent a misdiagnosis, tempered by cautious realism from members who emphasized the importance of evidence-based approaches while acknowledging the human need to search for answers when living with chronic pain.

A MyFibroTeam Member

In a child vitamin D deficiency can lead to longterm health problems in adulthood so they will be more concerned about him. Deficiency in adults can cause issues but increasing your levels by tablets probably won't make that much difference xxx

March 9, 2016
A MyFibroTeam Member

I think it helps a bit. Of course, like anything else too little or too much is no good. I noticed that I felt a little better after the big doses were done and I took the smaller doses consistently.

March 3, 2016
A MyFibroTeam Member

My rheumatologist was very glad I was put on vitamin d but said it would probably make no difference symptomatically, which it hasn't. She did feel however that for me to be brought up to more healthy levels of vitamin d could reduce the speed of progression and number of flares from my arthritis and my fibro

March 2, 2016
A MyFibroTeam Member

To learn more about Vitamin D search for "VitaminDwiki" and look at the section on Fibromyalgia

You may also find it useful to take a MINERAL Multi-Vitamin to make sure that you have enough Magnesium and Zinc etc. This adds the essential minerals that you may not receive from your food.
To find out more, search for "GreenVits"
.

March 2, 2016
A MyFibroTeam Member

Vitamin D3 is what you should be taking. Yes, most people w/ autoimmune issues are deficient. This is why I always ask to have it checked when I go in for blood work, as well as B levels, iron.

March 1, 2016

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