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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Ellesmere Port, UK
February 28, 2016
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Answer Summary

Members urged someone experiencing tingling and numbness around the mouth and lips to see a doctor rather than assume it's fibromyalgia, with... Read more

Members urged someone experiencing tingling and numbness around the mouth and lips to see a doctor rather than assume it's fibromyalgia, with several sharing that similar symptoms can stem from conditions like Sjögren's syndrome (causing chronic dry mouth), medication side effects, nerve compression in the neck, or even reactions to products like lipstick. Many members described their own experiences with facial numbness, dry mouth, and tingling in various body parts, emphasizing the importance of ruling out other causes since fibromyalgia can mask or be confused with separate medical issues. A recurring theme was the value of self-advocacy and not dismissing new or persistent symptoms, along with practical suggestions like using artificial saliva products, Biotene mouthwash, sugar-free gum, and lip balm to manage dryness.

A MyFibroTeam Member

Hi. I think the lesson here is not to ignore these things, or just think thst it is another FM symptom. If its a new symptom and lasting longer than a week or two get it checked out by your doctor.
If it is FM related there's a great bunch of fellow sufferers here to support you :-)

March 4, 2016
A MyFibroTeam Member

@A MyFibroTeam Member. I'm so sorry you are still having problems from that biopsy. They make Biotin products. They are great for dry mouth. If you rinse your mouth with the mouth wash before you go to bed it helps with the dryness.

March 2, 2016
A MyFibroTeam Member

Very good point 💖

March 4, 2016
A MyFibroTeam Member

Hi Jaye. Docs did consider Bells Palsy when symptoms started but excluded it as the cause. Ive had the symptoms for 15 years now so I know its nothing sinister, and more or less used to it. Mine doesn't worsen if laying down like Sharons & I don't have the dry mouth like she does either. Its one of those wierd FM things I guess. Strange how we can all have the same FM condition and yet it can affect us all individually with varying symptoms. This site does expand knowledge of the Fibro and help. Everyone here seem fantastic caring supporters. Wishing you all a good day.

March 3, 2016
A MyFibroTeam Member

Could be a side effect of a pill you are taking. I take topamax and zanaflex and tingling/numbness is a side effect of one of them.

February 29, 2016 (edited)

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