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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Kaplan, LA

Is anyone else dealing with difficulty speaking? I have recently (within the last month) have been battling cognitive and speech issues. I stumble on words, can not think of words, say different words than what I think. I have recently started to stutter, which I never had problems with.

February 12, 2016
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Answer Summary

Members connected over the scary and frustrating experience of altered speech and cognitive issues, with many sharing that stumbling over... Read more

Members connected over the scary and frustrating experience of altered speech and cognitive issues, with many sharing that stumbling over words, forgetting vocabulary, and saying the wrong words are common symptoms of fibro fog. Several members noted that stress, lack of sleep, flares, and certain medications like Topamax can make these symptoms worse, while advocating for awareness with family and friends helped reduce frustration on all sides. A recurring theme was the emotional toll of feeling embarrassed or misunderstood, met with warm encouragement from the community to be patient with yourself and seek medical guidance when needed.

A MyFibroTeam Member

I find that I am losing my vocabulary...I can picture something or someone in my mind, but there is a complete blank when I try to identify what I want to say... It's annoying and scary!! I have chalked it up to fibro fog...

February 14, 2016
A MyFibroTeam Member

Yes, me too. I have noticed this progressing over the past couple years...sometimes almost a stutter, loss of vocabulary, drawing a blank in the middle of explaining something, ...I agree with aspark99...it is scary and annoying and I tell my self it is fibro fog.

February 15, 2016 (edited)
A MyFibroTeam Member

I come out with different words than I want to say

February 13, 2016
A MyFibroTeam Member

I have this problem all the time. I will use the wrong word in a sentence or forget what I am trying to say altogether. I get very embarrassed because most people tell me I am an intelligent and well spoken person; so to go from that to stuttering and calling the coffee a cantaloupe can be a huge blow to your self esteem! What I have done is tried to just be aware of how I am feeling everyday and letting people know - WE MUST ADVOCATE FOR AWARENESS! If our family members, friends and even our co-workers are not given information so that they can also cope with our changing bodies then EVERYONE gets frustrated. I have found that with more information not only am I more patient with myself but so are other people.....Since this is unfortunately a symptom of an incurable dis.ease that we did not ask to have we just have to make the most of it and I find that the best thing I can do is laugh when I feel like crying and if I absolutely CAN NOT laugh then I just let the tears flow. DON'T BE HARD ON YOURSELF and anyone who makes you feel unlovable or like a burden because of your illness needs to be removed from your life immediately! you tell them to #KICKROCKS #LOVEASPOONIEMOVEMENT

Hope this is helpful and encouraging <3 Ms. Mighty

February 12, 2016
A MyFibroTeam Member

I have a stutter anyway but since I have had fibro I have noticed that some days my stutter is really bad, I try to take my time when speaking but it doesn't make any difference, I just have to suck it up and hope that tomorrow is a better day!

March 8, 2016

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