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A MyFibroTeam Member asked a question 💭
Ashford, UK

Has anyone found that their fibro has got worse over time?

February 12, 2016
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Answer Summary

Members shared deeply varied experiences about whether fibromyalgia worsens over time, with the overwhelming majority saying yes, citing... Read more

Members shared deeply varied experiences about whether fibromyalgia worsens over time, with the overwhelming majority saying yes, citing increased pain, spreading symptoms, reduced mobility, and the challenges of aging and overlapping conditions like arthritis, chronic fatigue, and neuropathy. Several members offered practical strategies that have helped them manage progression, including daily gentle exercise (especially water-based therapy or 10 minutes on an exercise bike during flares), improving sleep with melatonin or trazodone, low-carb or gluten-free diets, pacing activities, massage, stress reduction, and refusing to let the disease define them. A recurring theme was the importance of self-advocacy in the face of dismissive doctors, the emotional toll of losing independence and relationships, and the power of faith, humor, and community support to keep fighting when the pain feels unbearable.

A MyFibroTeam Member

I HATE TO SAY THIS ,BUT YES! AND WHEN YOU ARE GOING THREW THE CHANGE IT GETS REALLY BAD ! SO sorry to let you know ! but one thing i must say and give credit to is my HEAVENLY FATHER ,AND MY LORD AND SAVIOR ! Has answered my prayers ! and i must give credit were credit was due !i use to hurt oh my goodness so very bad ! the pain has lessen by so much ! so i am hear to say that prayers work and our father does answer them ! always michele !sending out prayers , joy , love , peace and strength to one and all

February 12, 2016
A MyFibroTeam Member

In my experience it has.

February 12, 2016
A MyFibroTeam Member

Oh come on guys a lot of men have full blown fibro such as myself and we handle it just fine, i have had it for maybe 20yrs but only found out 15yrs ago and i worked a busy heavy job whilst suffering because i had a young family to take care of. I have managed to keep my sense of humour through all of this even after my wife walked out on me because of the condition so please think before you generalise about men xx

February 28, 2016
A MyFibroTeam Member

Rebecca, In my experience it has....Early on, I would have a flare up about every 6 mo....Not it stays with me all the time....The trick is to find the right med that helps you at THIS time....Be prepared for these meds to have to be changed along the way. Praying for your soft future....

February 12, 2016
A MyFibroTeam Member

Mine definitely has too. I thought that it had improved until I forgot to take my pain meds.. that was one of the most painful experiences I've ever had.... (childbirth excluded!)

February 12, 2016

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