I find there's days when it's too exhausting to get a wash (no I don't smell lol) quite often a shower can really take it out of me so I need to be careful who I judge myself and only have a nice relaxing sorry exhausting shower on my good days

could it be the water is to hot ? but me having seizures i also have to sit on the side of the tub and take a bird bath ! but when am able to get in the shower if the water is to steamy i get dizzy also ! it is my blood pressure going down so i have to turn on the cold water for a few . and then when i get out i have to sit in front of the fan ! weird i know ! here's to hoping you can take some bath's or showers ! my grandson or the nurse watches me to make sure i do not have a seizure ! god bless you always michele

I love the warmth of the shower on my limbs. It seems to help. But I have other things which give me the same feeling you do. I do make rules that I have to do certain things every day or once a week -- whenever. No matter how much it hurts, I need that sense of accomplishment. It makes me feel so good mentally.

I am exactly the same hunni, I don't shower too often but I have a wash everyday. Showering for me is agonising and an accomplishment too. I suffer from drop attacks so I am nearly always guaranteed to fall or collapse after taking a shower or doing anything that's pushing myself beyond my means. I have a community alarm now in the house for when I fall or collapse, I just press my pendant on my wrist and my alarm goes off for someone to help me. I have to take my inhaler into the shower with me cause I get so breathless showering. So I sympathise with you and you got it spot on, it is like climbing Mt. Everest. Hugs to you xxx

there has been many times I have had to wrap the towel around me and sit on the edge of the shower when I was finished because it tired me out so much i had to rest before I could continue to get dressed it is so hard sometimes to accept 4 years ago I was working 51 hours a week and now I am to weak a lot of days to walk across my house. I am so sorry I wish no one had to go through this mine came on sudden and progressed so fast its hard to wrap my mind around it some days.