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Sleep Apnea, Seizures And Narcolepsy

A MyFibroTeam Member

Does anyone have sleep apnea and use either a cpap or bipap? I know when undiagnosed and left untreated you have headaches, possibly seizures, shortness of breath etc? Treatment for the severe sleep apnea has been started on me, which helped my headaches and a lil bit of the exhaustion which in turn helped my mood swings. The neurologist instructed me that he had to get the apnea under control then deal with the continued sleepiness and falling asleep without knowing, temporarily. So, now I'm a documented narcolepsy patient. I ended up having a car accident last March from falling asleep due to an absence seizure and not knowing how i got 40 miles from my house when I was only going 15 miles. My other question is questioning if anyone has been diagnosed as narcoleptic and are you on any meds? I started Provigil today. I'm waiting for some real sleep tonight to see if it helps keep me up tomorrow. Headaches and unknowingly falling asleep when I'm still is aggravating for me. I'm not being treated for my fibro at present because I see docs at the county and they are under the impression that it's solely a mental health issue. Grrr! I'm a nurse, geez I know from taking care of patients and my previous doc that it's not plain mental and that the pain can be controlled with the right meds. Ughhh!

posted February 8, 2016
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4 replies
A MyFibroTeam Member

@A MyFibroTeam Member i had the same issue and the on lab sleep study showed that i was having central apneas along with obstructive. Central means that your brain isn't telling your lungs to breathe. My BiPAP has fixed that tho the machine still shows that I have a few, but way less than before my machine.

posted February 9, 2016
A MyFibroTeam Member

I have sleep apnea and use cpap I find it difficult because the fibro pain in the back of head means I cant always use the mask but last night I was dreaming I couldn't breath and woke up ... I actually felt like my heart was stopping it was going so slow and couldn't catch my breath .. Safe to say the mask will be on tonight

posted February 8, 2016
A MyFibroTeam Member

Yes have sleep apnea for like 10 years know and sleep with mask.It had help me a lot .still don`t sleep good but the little i get it helps.

posted February 8, 2016
A MyFibroTeam Member

Hi. I'm sorry you are going through all of this but I'm so happy you have a dr who is working with you. God bless you and keep you on your journey. Much love and many gentle hugs - Em xxxx

posted February 8, 2016

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