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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Pip

A MyFibroTeam Member asked a question 💭
Glasgow, UK

Got accepted for pip but only the low rate didn't get anything for the mobility side has anyone had any experience with them is it worth an appeal ?

January 31, 2016
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Answer Summary

Members shared frustration over PIP assessments they felt were inaccurate or dismissive, with several describing decisions that contradicted... Read more

Members shared frustration over PIP assessments they felt were inaccurate or dismissive, with several describing decisions that contradicted what they reported during evaluations, particularly around medication management and mobility limitations related to fibromyalgia. Many community members described their appeal strategies, including requesting mandatory reconsiderations, bringing witnesses to assessments, submitting detailed complaints about assessment inaccuracies, and seeking advice from disability welfare officers before deciding whether to appeal or reapply. A recurring theme was the emotional toll of fighting for support, the risk of losing existing awards during appeals, and the importance of gathering strong medical evidence and focusing specifically on how conditions affect the 12 daily activities rather than just proving a diagnosis exists.

A MyFibroTeam Member

Hi hun I got completely overlooked for fibro but got low rate for my mental health after mandatory reconsideration. I have asked my disability advisor what to do next so I'll say what she says should have an answer this week

January 31, 2016
A MyFibroTeam Member

I think you'll find your condition is not in dispute , evidence of having conditions is not enough it has to be evidence that you can't complete the 12 activities , it's these that Pips all about :)

June 14, 2016
A MyFibroTeam Member

OK disability solutions rang and gave me a definitive not to challenge mine as I'd primarily applied for my mental health and fibro came within the claim but later. I was advised at every appeal, mandatory review or tribunal the whole case and even though I've been made an award it will be reassessed and as with all things if reassessed I do run the risk of it not being reawarded. please don't rely on this and seek your own advice but on this basis as I'm still incredibly unwell and not up to the fight I'm taking what I have for now and will reconsider applying again at the end of the year once I have full colorectal surgery evidence and Fibromyalgia medical evidence. xx

February 1, 2016
A MyFibroTeam Member

I was also awarded low rate care and no points at all for mobility, all the forms and the assessment was a complete waste of time, the reasons that came back was fiction, even mentioned planning a journey which was not mentioned at all during my assessment, I have requested a review, now just a waiting game... I thought I would have qualified for the mobility side higher than the care... I am unable to find any organisation that can help me... fingers crossed.

February 1, 2016
A MyFibroTeam Member

@elsabel you've had the same lip service treatment I got first time around. you're assessed whether you can physically put it in your mouth and swallow it unaided - did you have a witness at your assessment who can sign off a statement backing you up uou told them this? My first letter was an absolute work of fiction. My carer and I compiled an 8 page complaint about how the assessment was handled and what they had witnessed vs what was recorded. I won at mandatory review but was 1 point off higher rate and they have STILL completely ignored fibro and my bowel bleeds that limit my mobility and cause excruciating pain. so I got nothing for mobility. I'm waiting though to see what the disability advisor says as if I get payments stopped whilst it appeals it will be a disaster for me - so I need to know all the possible outcomes. I may have to reapply just for fibro and my other illness in a few months when there's more medical evidence. good luck.

January 31, 2016

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