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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

This isn't an excuse, or not wanting to take accountability for my actions, but I look back since the beginning of my marriage, and I see the downhill struggle I had/have accomplishing tasks. I see the trouble I've had with my brain fog, remembering things or simply forgetting how to do things I once had no trouble with
I consider myself to be very perceptive. It's with that same perception I knew I had hypothyroidism, Fibromyagia before my doctors did. I also knew my husband had/has diabetes.… read more

January 23, 2016
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Answer Summary

Members opened up about the profound strain fibromyalgia places on marriages and relationships, sharing feelings of guilt, lost identity,... Read more

Members opened up about the profound strain fibromyalgia places on marriages and relationships, sharing feelings of guilt, lost identity, financial dependence, and the exhausting burden of having to stay positive for both partners while battling invisible symptoms like brain fog and chronic fatigue. Several members described practical strategies that helped their relationships survive, including bringing spouses to doctor appointments so they could witness and understand the condition firsthand, setting clear boundaries about self-care needs, using couples counseling to rebuild trust and communication, and finding small ways to stay connected like taking walks together or playing games as a family. A recurring theme was the deep loneliness of feeling misunderstood or judged by the person who promised to love you in sickness and in health, balanced by hope from those whose partners eventually learned to see chronic illness not as a character flaw but as a shared journey requiring patience, compassion, and teamwork.

A MyFibroTeam Member

Yes, we try to be all things to all people, but seriously, at the end of the day we need to take care of ourselves so we can take care of others. I definitely feel your pain with this! My husband is mostly understanding , but trying to be that positive person, perfect wife isn't realistic on bad days and fear kicks in when we feel we are being judged. Big hugs to you!

January 23, 2016
A MyFibroTeam Member

I am so sorry & can't possibly understand only empathise with what u are going through. I've been married for 26yrs we have been through so much s..t before we met & together since, I think comunication is an important factor 2 maintain a good marriage. Up until the end of last summer for 2yrs my hubby & I drifted apart & stopped communicating was a difficult time as my health problems got worse I felt like I had lost my rock during that time until September when I was finally diagnosed with fibro by a new brill doctor who told us that we needed to help each other through this be on the same page. Then my hubby started reading all fibro info I gave 2 him & we talked/sorted through our issues we now closer than ever before. Its not easy we just take one day at a time because in a marriage u both change over the years u are never the same 2 people u were at the beginning no one is as u get older so u both have 2 grow & adapt 2 each others needs. He helps & supports me as I do him work 2gether as a team he accepts & understands my limitations & knows that I always try & do what I can having a positive attitude is a must

January 24, 2016 (edited)
A MyFibroTeam Member

i feel your pain & frustration , i have been blessed with someone who understands how fibro has made a huge impact on our lives & he has come to 95% of my doctors appointments with me so he trys to understand what is happening to me . Yes it has been hard on our relationship but it seems to make us stronger in life together .This journey we are on is not going to be easy but somehow through all our pain & struggles that we face it sure makes our love for each other stronger . i wish i could jump through the screen & give you both a huge hug to help you get through this ok love ,peace & happy smiles for you KIM

January 23, 2016
A MyFibroTeam Member

Oh my god - THIS! When you mention having to be positive for both of you ... Me too! I love my husband dearly, but me being so dependent on him and others has made me so much less attractive than when I met him and was an independent student taking on the world.

I see him excell at his job and it only makes me feel worse about my lack of a job. I told a friend earlier today, his over large ego and my deflated ego are not a good combination.

You are NOT alone. You are very much in good (although unhappy) company.

January 23, 2016
A MyFibroTeam Member

OMG. I just felt like I was reading my own story. You are not alone. I diagnosed myself with my Fibro, bi-polar,hypothyroidism, etc long before my doctors. I also have that insight. And yes even after 34 1/2 years of marriage it is still a struggle. My mood swings don't help and he has to deal with with two conditions so double whammy on the mood swings. We have done counselling and we really have to keep working on our marriage. He is finally coming around. He doesn't get the pain and exhaustion. Hell after all this time together he is just finally researching bi-polar after a nasty rapid cycling stint lately. My next struggle is getting him to learn about Fibro. One baby step at a time. Just keep working at it? Hugs

January 25, 2016

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Drexel Hill, PA