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A MyFibroTeam Member asked a question 💭
Kansas City, MO

How scary is it going down a staircase? I find it easier if I step down sideways and grasp the handrail. Am I the only one?

January 8, 2016
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Answer Summary

Members shared deep understanding around the frightening experience of navigating stairs with balance and mobility issues, with many... Read more

Members shared deep understanding around the frightening experience of navigating stairs with balance and mobility issues, with many describing strategies like using handrails religiously, taking steps sideways, placing both feet on each step, sitting and sliding down at home, or carrying a cane or hiking pole for stability. Several members recounted falls on stairs or in gardens, feelings of disorientation and muscle fatigue that strike without warning, and the fear of getting stuck midway or misjudging footing, leading many to avoid stairs altogether or request seating near the bottom at public venues. A recurring theme was the relief of knowing others face the same invisible challenge, the importance of adaptive strategies and assistive devices, and the shared frustration that people without these conditions rarely understand just how terrifying a simple staircase can be.

A MyFibroTeam Member

I have similar problems with stairs. It's especially bad if it is a longer set of stairs that go straight without any landings. I feel the need to constantly look down and end up getting a very disoriented, unbalanced feeling. I often feel like I'm going to fall over by the end. I often get this feeling while going downstairs but also have problems going up. Usually I just misjudge my footings. I have fallen several times going upstairs--one time when it was only three steps.

January 10, 2016
A MyFibroTeam Member

I do exactly the same thing. My muscles will give out on me without any warning and my fatigue level in my muscles becomes almost intolerable. I avoid going up more than just a few stairs with a passion

January 9, 2016
A MyFibroTeam Member

No one ever understands how scary going down stairs or even stepping off a step ladder can be. Sometimes it's just not worth it.

January 9, 2016 (edited)
A MyFibroTeam Member

Yep i take each step sideways and hold the rail like there is no tomorrow, going down scares me but climbing them is my danger time as this is where i fall a lot

January 11, 2016
A MyFibroTeam Member

I constanly feel like I'm going to fall when coming down stairs and always hold the rail and get both feet on each step before progressing to the next one

January 10, 2016

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