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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Ottawa, ON

Has anyone ever had Serotonin Syndrome? Most of the Fibro Meds seem to have an affect on Serotonin, and I take 3 of them right now. My Pharmacist told me that it usually involves sweating, fever and diarrhea but I've also read muscle rigidity which I'm assuming is muscle pain. How would we know if we had it when Fibro involves so much muscle pain?

January 2, 2016
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Answer Summary

Members shared personal experiences with serotonin syndrome after a question about recognizing symptoms while managing fibromyalgia, with... Read more

Members shared personal experiences with serotonin syndrome after a question about recognizing symptoms while managing fibromyalgia, with several describing serious episodes involving involuntary muscle jerking, severe tremors, hallucinations, unconsciousness, and worsening fatigue that only improved after reducing or stopping medications. Many members expressed frustration with the challenge of distinguishing between medication side effects and fibromyalgia symptoms, especially when doctors offer conflicting diagnoses or limited guidance beyond referring patients back to their general practitioners. A nurse practitioner reassured the community that true serotonin syndrome is rare and typically severe enough to require emergency care, with distinct symptoms like high fever and rapid heart rate that go beyond typical fibro pain.

A MyFibroTeam Member

Serotonin syndrome symptoms are high fever, muse rigidity Agitation or restlessness Confusion Rapid heart rate and high blood pressure Dilated pupils Loss of muscle coordination or twitching muscles Muscle rigidity heavy sweating Diarrhea Headache Shivering Goose bumps

January 6, 2016
A MyFibroTeam Member

My mother is going to docs today. I read tremors and shakes can also occur. How do we know when enough is enough medicine and/or a change. I don't understand how they measure this. It all seems so hit or miss. It is not right and the term hypochondriac is often rallied about. :(

January 4, 2016
A MyFibroTeam Member

Very few people get serotonin syndrome. Usually there is a fever associated and it is way worse than fibro, you end up in the ER. I am an NP and I have had 1 patient in 27 years of practice develop it.

January 3, 2016
A MyFibroTeam Member

I've always wondered that myself. One dr told me that's what it was and two others said it wasn't. It s hard to decipher with all the side affects and fibro symptoms.

January 2, 2016
A MyFibroTeam Member

My Rheumatologist told me the same thing. Have my GP treat me. I was hoping for a Fibro specialist.

January 2, 2016

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