Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Rockton, IL

I have been reading some peoples posts and have read that some are seeing Neurologists. I was never told to see one. Been dealing with this for over 17yrs. So do you think I should see one? Is that the only way to find out if you have MS?

December 31, 2015
 · 
Be the first to react

Answer Summary

Members discussed whether seeing a neurologist is necessary for fibromyalgia, with experiences varying widely as some found their... Read more

Members discussed whether seeing a neurologist is necessary for fibromyalgia, with experiences varying widely as some found their rheumatologists most helpful while others were told neurologists typically do not treat fibro. Several members shared that the medical community is in a transitional phase, as emerging research suggests fibromyalgia may be neurological rather than arthritic, leading to confusion about which specialty should manage care. A recurring theme was frustration with doctors who refuse further treatment or referrals, with members encouraging each other to advocate firmly for second opinions, specialist consultations, and diagnostic tests like MRIs when other conditions like MS need to be ruled out.

A MyFibroTeam Member

Recently I took a course through the Arthritis Society. The topic came up that Rheumatologists seem to be refusing to treat Fibro patients more and more. The teacher said that due to the new research that is suggesting Fibro is neurological and not arthritic we are in a transitional phase. She predicted that within the next decade it will be Neurologists that treat Fibro. The same thing apparently happened with MS in the beginning. When I first got diagnosed I asked my GP why I wasn't referred to a Neurologist since Fibro was caused by brain abnormalities and he said that Fibro is NOT neurological. It may take a while before the whole medical community is properly educated and on the same page. In the meantime it feels like we are in limbo.

January 1, 2016
A MyFibroTeam Member

I also never saw a neurologist. I have had my best luck with my rheumatologist.

January 1, 2016
A MyFibroTeam Member

My neurologist did a lot of tests to rule out other things, then told me most neurologists don't treat fibromyalgia. He said I could go to a rheumatologist if I wanted more answers. So unless you are concerned something else is going on besides the fibromyalgia, I wouldn't think it was necessary.

January 1, 2016
A MyFibroTeam Member

Depending on whete u live and what type of insurance u habr u may not need a referrel, check with ur insurance and neurologist office, sometimes ur copay may be more

January 11, 2016
A MyFibroTeam Member

Trust me I believe and have to believe there is something out there to help all of us with this disease. A doc that says he can do nothing more for you needs to send you to someone that can! Unless he orders you an MRI you can't find out if you have MS. Personally i'd tell them to kiss my back side and find a new doc.

January 11, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Sheffield, England